Pain Management and Vasculitis

Part 1

Welcome and Introductions.	0:04
Overview of presentation on pain management.	1:59
Four clinical cases.	2:22
Pain and the brain.	7:11
Different “types” of pain.	7:51
Sensory motor and autonomic nerves.	8:52
Neuropathy.	9:46
Vasculitis and the nerve.	10:27
Systemic forms of vasculitis that affect the nerves.	12:36
Symptoms	14:31
Vasculitic neuropathy	15:15
Diagnosis	15:43
Lab testing.	16:39
Electromyography (EMG).	17:41
Nerve biopsy.	18:33
Treatment of vasculitis: The goal is to stabilize and prevent more damage.	20:28
Treatment for the pain.	22:54
Other treatments?	24:05
Prognosis.	25:48
Summary.	26:35

For many patients with vasculitis, dealing with pain can be a debilitating, relentless struggle. In this video, Dr. Tanaz Kermani, gives an overview of the way that neuropathy and vasculitis are connected. She covers evaluation and diagnosis, treatment, and recovery/management of pain.

Part 2

Charlie Grainger talks about dealing with pain and vasculitis.	0:15
Implanting a spinal cord stimulator to help manage the pain.	4:36
People don’t understand this level of unrelenting pain.”	6:51
Talking about vasculitis starting systemically and then affecting nerves as opposed to pain starting with nerves and spreading out systemically.	9:06
Q: Does neuropathy typically develop in early, or later stages of an onset of vasculitis?	10:54
Q: Do different types of vasculitis present with pain in different ways throughout the body?	12:10
Q: Can neuropathy increase or decrease depending if steroids levels are increased or decreased?	13:01
Q: When a patient goes to emergency department with pain they are sometimes met with skepticism. How should we as patients be prepared to communicate effectively with the staff?	14:31
Q: Should we try to still be active when we’re having pain? Should we push ourselves or curtail physical activity when pain is an issue?	16:01
Q: What about benefits of water exercise therapy?	18:40
Charlie: Be careful not to overdo it when you start to feel better.	19:35

In the second part of this webinar we learn firsthand how patient, Charlie Grainger, has experienced chronic neuropathy with his vasculitis. He talks about various ways to manage the pain, including a recent implant of a spinal cord stimulator. Webinar host, Kathy Olevsky, shares her particular challenge as a martial artist dealing with neuropathy that accompanied her diagnosis.

Also, Dr. Kermani answers some of the excellent questions submitted by patients.

Vasculitis Types

Pediatrics

Resources

Be Inspired

Patients

Researchers

Join

Give

Educational Videos