Videos: A Patient’s Perspective

Videos: A Patient’s Perspective

Managing Vasculitis: A Patient’s Perspective
Presented: March 23, 2017
Speaker: Jennifer Gordon, PhD
Click here to access the webinar.

In this webinar, Dr. Jennifer Gordon discusses her experiences as a patient with EGPA/Churg-Strauss syndrome, including the importance of setting priorities, tracking symptoms, communicating with doctors, and developing critical thinking skills that can help in managing vasculitis.

Dr. Gordon holds a PhD in Pathology and is on the faculty of a medical school in the Northeastern United States. She is an NIH-funded biomedical researcher studying neurological disorders and infectious diseases, including two rare diseases.

She was diagnosed with EGPA/CSS in 2014 and is a patient-partner in the Vasculitis Patient-Powered Research Network (VPPRN). Dr. Gordon serves on the Research, Innovation, Planning, and Experiments (RIPE) Working Group, which is tasked with formulating ways to conduct clinical research trials and advancing a subset of these studies into project summaries or full research protocols. These projects will range from surveys to observational studies to clinical trials of new treatments. The RIPE Working Group will generate research ideas within the group, solicit ideas from patients with vasculitis and prioritize a research agenda based on scientific merit, feasibility, and patient interest.

Dr. Gordon is committed to using her skills and knowledge for research and education toward improving the lives of people with vasculitis.