In this video, Dr. Divi Cornec, and Dr. Alvise Berti give an overview of Cryoglobulinemia (Cryo), one of the most rare of forms of vasculitis. They are joined by Steph Lee, a patient with Cryo who shares her story about the challenges of getting a diagnosis.
VF Disease Insights: Steph’s story about living with Cryo
Steph Lee talks about her seven-year odyssey of trying to get a diagnosis for her unexplainable symptoms, and how her life has changed after being diagnosed with vasculitis. It’s a fascinating interview as Steph details the ways she has adapted her life to meet the challenges of cryo.
Cryoglobulinemia: A Patient Panel Discussion
Learn more about how Cryoglobulinemia (Cryo) directly impacts the life of two patients who live with this rare form of vasculitis. VF webinar host, Kathy Olevsky, has a fascinating conversation with Csilla who was originally diagnosed in the eighties. She is joined by Bob Newman from the U.K. who was diagnosed in 2006.
They talk about the numerous unique challenges from Cryo with a special focus on having to adapt to cold temperatures that can trigger serious medical reactions. Bob and Csilla also candidly share how Cryo has impacted their family and friends relationships. They conclude with a positive message about finding strength through an online Cryo community, and becoming self-advocates to get the best outcome while managing their disease.