Educational Videos

2022 Vasculitis Pediatric Conference: Patient Engagement: Research (VPPRN) and Community

Introductions. 0:14
How few pediatric rheumatologists are in the U.S. 2:10
Difference between research participant and research partner. 3:10
Engagement at every stage of the research cycle allows for shared learning. 3:50
The mission of the VPPRN. 4:11
Who makes up the VPPRN? 5:11
VPPRN Membership: Disease Breakdown 5:31
Who can join the VPPRN? 5:44
VPPRN Vasculitis Pediatric Registry 6:20
Childhood Arthritis and Rheumatology Research Alliance (CARRA) 8:27
VF Pediatrics and Young Adults Web Page 9:48
New Facebook Group: Kids get vasculitis too– a group for parents/caregivers. 11:34
New VF Zoom Chat: Parents with children with vasculitis. 12:12
Summer camp for kids with rheumatologic conditions. 12:58
More online resources 13:40

Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado