Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado
2022 Vasculitis Pediatric Conference: Patient Engagement: Research (VPPRN) and Community

Introductions. | 0:14 |
How few pediatric rheumatologists are in the U.S. | 2:10 |
Difference between research participant and research partner. | 3:10 |
Engagement at every stage of the research cycle allows for shared learning. | 3:50 |
The mission of the VPPRN. | 4:11 |
Who makes up the VPPRN? | 5:11 |
VPPRN Membership: Disease Breakdown | 5:31 |
Who can join the VPPRN? | 5:44 |
VPPRN Vasculitis Pediatric Registry | 6:20 |
Childhood Arthritis and Rheumatology Research Alliance (CARRA) | 8:27 |
VF Pediatrics and Young Adults Web Page | 9:48 |
New Facebook Group: Kids get vasculitis too– a group for parents/caregivers. | 11:34 |
New VF Zoom Chat: Parents with children with vasculitis. | 12:12 |
Summer camp for kids with rheumatologic conditions. | 12:58 |
More online resources | 13:40 |
Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado
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