Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado
2022 Vasculitis Pediatric Conference: Patient Engagement: Research (VPPRN) and Community

Introductions. | 0:14 |
How few pediatric rheumatologists are in the U.S. | 2:10 |
Difference between research participant and research partner. | 3:10 |
Engagement at every stage of the research cycle allows for shared learning. | 3:50 |
The mission of the VPPRN. | 4:11 |
Who makes up the VPPRN? | 5:11 |
VPPRN Membership: Disease Breakdown | 5:31 |
Who can join the VPPRN? | 5:44 |
VPPRN Vasculitis Pediatric Registry | 6:20 |
Childhood Arthritis and Rheumatology Research Alliance (CARRA) | 8:27 |
VF Pediatrics and Young Adults Web Page | 9:48 |
New Facebook Group: Kids get vasculitis too– a group for parents/caregivers. | 11:34 |
New VF Zoom Chat: Parents with children with vasculitis. | 12:12 |
Summer camp for kids with rheumatologic conditions. | 12:58 |
More online resources | 13:40 |
Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado
Building upon the collective strength of the vasculitis community, the Foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.
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