2022 Vasculitis Pediatric Conference: Patient Engagement: Research (VPPRN) and Community

Introductions.	0:14
How few pediatric rheumatologists are in the U.S.	2:10
Difference between research participant and research partner.	3:10
Engagement at every stage of the research cycle allows for shared learning.	3:50
The mission of the VPPRN.	4:11
Who makes up the VPPRN?	5:11
VPPRN Membership: Disease Breakdown	5:31
Who can join the VPPRN?	5:44
VPPRN Vasculitis Pediatric Registry	6:20
Childhood Arthritis and Rheumatology Research Alliance (CARRA)	8:27
VF Pediatrics and Young Adults Web Page	9:48
New Facebook Group: Kids get vasculitis too– a group for parents/caregivers.	11:34
New VF Zoom Chat: Parents with children with vasculitis.	12:12
Summer camp for kids with rheumatologic conditions.	12:58
More online resources	13:40

Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado

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