2022 Vasculitis Pediatric Conference: Panel Discussion: Living with Vasculitis: Mental Health and Education - Vasculitis Foundation

2022 Vasculitis Pediatric Conference: Panel Discussion: Living with Vasculitis: Mental Health and Education

July 22, 2022

Living with vasculitis and mental health. Chloe Freeman.	2:15
Common reactions and mental/behavior health concerns	3:17
Parent strategies to promote positive coping.	5:08
Empathic listening and emotion awareness.	8:12
Empathy video clip.	9:36
Active listening techniques.	13:23
Coping and relaxation skills.	15:45
Manage expectations and promote functioning.	18:36
Ways to get connected.	19:48
Q: What if emotional problems are compounded by other issues such as autism?	22:14
Chronic medical conditions and school.	25:11
Common school concerns: medical, social, and academic.	27:03
Special education process.	28:05
Special education support. Section 504 plan. Individualized education program.	30:08
Tips for communicating with schools.	35:03
Child transition to adulthood.	38:34
Transfer of care.	39:58
Role of primary care provider/specialist.	40:45
Barriers.	43:14
Resource: Got Transition	44:51
Special questions concerning young adults with rare diseases.	46:44
Valuable online apps.	48:06

Vidya Sivaraman, MD
Pediatric Rheumatologist, Associate Professor of Clinical Pediatrics at The Ohio State University, Nationwide Children’s Hospital, Columbus, Ohio

Camille Wilson, PsyD
Big Lots Behavioral Health Department of Psychology, Nationwide Children’s Hospital, Columbus, Ohio

Chloé Freeman, PsyD
Big Lots Behavioral Health Department of Psychology, Nationwide Children’s Hospital, Columbus, Ohio