Alliance for Cryoglobulinemia is an inclusive network of patients, caregivers, family, medical professionals and other supporters dedicated to improving quality of life for people with cryoglobulinemia. For more information please contact Marianne Vennitti, 856-488-4085 or Eileen Propp, 925.315.7273. Visit their website....
The Cryoglobulinemia Vasculitis Organization (CVO)
The mission of CVO is to champion advocacy programs regarding the care, treatment, research, diagnosis AND the use of service dogs for those suffering from cryoglobulinemia and associated conditions. CVO was established to unite patients and the medical community in managing and drawing attention to cryoglobulinemia, a rare blood disease that…...
PEXIVAS
PEXIVAS: An International Randomized Controlled Clinical Trial Assessing Plasma Exchange and Steroid Dosing in the Treatment of Severe Anti-Neutrophil Cytoplasm Antibody (ANCA) Associated Vasculitis Introduction: The PEXIVAS study is the largest clinical trial ever to be conducted for vasculitis. The study will study 500 patients with ANCA-associated vasculitis with granulomatosis…...
Longitudinal Protocol for Granulomatosis with Polyangiitis (Wegener’s) and Microscopic Polyangiitis
5505: Longitudinal Protocol for Granulomatosis with Polyangiitis (Wegener’s) and Microscopic Polyangiitis Status: Recruiting Summary: Vasculitis Clinical Research Consortium 5505: In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time. The data from the longitudinal studies…...
Longitudinal Protocol for Polyarteritis Nodosa
Vasculitis Clinical Research Consortium 5504: Longitudinal Protocol for Polyarteritis Nodosa Status: Recruiting Summary: In the longitudinal studies, clinical and laboratory information will be collected on patients with vasculitis to study the disease over an extended period of time. The data from the longitudinal studies will be used by scientists to…...
