The VF YouTube Awareness Channel was created in 2011 and features videos of patients, family members and caregivers sharing their experiences living with vasculitis. These 6-8 minute videos are done in a Q&A style allowing individuals to share their personal accounts detailing not only the impact of the disease on…...
YouTube Extraordinary Patient Video Stories – Henoch-Schönlein Purpura
The VF YouTube Awareness Channel was created in 2011 and features videos of patients, family members and caregivers sharing their experiences living with vasculitis. These 6-8 minute videos are done in a Q&A style allowing individuals to share their personal accounts detailing not only the impact of the disease on…...
YouTube Extraordinary Patient Video Stories – Behcet’s
The VF YouTube Awareness Channel was created in 2011 and features videos of patients, family members and caregivers sharing their experiences living with vasculitis. These 6-8 minute videos are done in a Q&A style allowing individuals to share their personal accounts detailing not only the impact of the disease on…...
Wegener Infos Et Autres Vascularites (France)
Nous avons organisé une trentaine de réunions publiques d’informations sur nos maladies rares, dans les divers Centres Hospitaliers de France, qui ont réuni environ 2.000 auditeurs. Les intervenants tous spécialistes membres du GFEV (Groupe Français d’Etudes des Vascularites) furent au nombre de 52. Nous avons pu compter sur l’aide très…...
