YouTube Extraordinary Patient Video Stories – Henoch-Schönlein Purpura

The VF YouTube Awareness Channel was created in 2011 and features videos of patients, family members and caregivers sharing their experiences living with vasculitis. These 6-8 minute videos are done in a Q&A style allowing individuals to share their personal accounts detailing not only the impact of the disease on…...

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YouTube Extraordinary Patient Video Stories – Behcet’s

The VF YouTube Awareness Channel was created in 2011 and features videos of patients, family members and caregivers sharing their experiences living with vasculitis. These 6-8 minute videos are done in a Q&A style allowing individuals to share their personal accounts detailing not only the impact of the disease on…...

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Cryoglobulinemia (video) featuring Dr. Antonietta M. Gatti

Cryoglobulinemia (video) featuring Dr. Antonietta M. Gatti...

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Wegener Infos Et Autres Vascularites (France)

Nous avons organisé une trentaine de réunions publiques d’informations sur nos maladies rares, dans les divers Centres Hospitaliers de France, qui ont réuni environ 2.000 auditeurs. Les intervenants tous spécialistes membres du GFEV (Groupe Français d’Etudes des Vascularites) furent au nombre de 52. Nous avons pu compter sur l’aide très…...

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YouTube Education Videos produced by Alliance for Cryoglobulinemia

Cryoglobulinemia Simulation:  A simulation of the behavior of Cryoglobulins in blood as it cools. Artwork by Amy O’Hanlon. Cryoglobulinemia Explained:  Paul Monach, M.D., Director of the Boston University Vasculitis Center answers questions regarding Cryoglobulinemia and Vasculitis. Sponsored by Propp Solutions. Videos produced by Alliance for Cryoglobulinemia....

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