The Lauren Currie Twilight Foundation (LCTF) – Scotland

The LCTF was established in October 2010 in the memory of Lauren Currie who died from Vasculitis and specifically the rare condition, Wegener’s Granulomatosis (GPA) at the age of 15. The Foundation is  committed and focused on the following objectives:  To raise and maintain a national awareness of vasculitis; to…...

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The Ricardo Lee Vasculitis Foundation (Jamaica)

The foundation was founded in the memory of Ricardo, who passed away at age 32 of complications from vasculitis. The foundation organizes awareness and fundraising events to increase understanding of vasculitis in Jamaica. For more information please email Olive Creary....

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The Polyarteritis Nodosa Support Network (PSN)

The PAN Support Network 2012 (PSN) is a not-for-profit organization with more than 700 members world-wide. Patients, caregivers, physicians, research specialists provide invaluable education and support through a mailing list, live chat sessions, and other web resources.  Visit their website....

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National Organization of Rare Diseases (NORD)

NORD is dedicated to helping the nearly 30 million Americans with rare diseases, and the organizations that serve them, through programs of education, advocacy, research, and patient services.  Visit their website....

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German Vaskulitis Patient Group (Germany)

The assignment of the German Vaskulitis Support Group has been and will be to give the necessary support to patients and their relatives to enable them to cope with the serious diagnosis. Exchange among affected people, for example in regionally established groups, is tremendously important, because a vasculitis-patient will usually…...

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