At the age of 16 I suffered an extreme lung hemorrhage that nearly took my life, and four months later was diagnosed with GPA/Wegener’s (Wegener’s Granulomatosis at the time). Since then I have gone through standard treatments, suffered 2 relapses, and struggled with injections, steroids, and maintenance medication. Through my teens and early 20’s I realized I wanted to do something to fight back against this rare disease, and help others who had been diagnosed as well. A friend inspired me to do something unprecedented to raise support for vascular disease, but it took me several months to decide exactly what that was.
The goals of my project are:
- To raise awareness of vasculitis.
- To donate funds to the Vasculitis Foundation.
- To connect with patients and their families in each area, particularly teens afflicted by chronic illnesses.