More than 300 million people in the world are affected by a rare disease. Rare is everywhere. As a Rare Disease Center of Excellence, Nationwide Children’s is a trusted medical home where patients with rare disease and their families come to find answers. Join the 4th Annual Rare Disease Day at Nationwide Children’s to raise awareness of rare diseases and support patients and families affected by them.Check out the Rare Disease Day Brochure for additional information.
Register here.
CME
Date & Location:
Tuesday, February 22, 2022, 4:00 pm – 7:30 pm, Online, Columbus, OH
Credits
Non-Physician Attendance (2.50 hours)
Agenda
Linking Patients, Families and Physicians: The DADA2 Experience
Chip Chambers, MD
Assistant Professor of Surgery, Vanderbilt University
Founder, DADA2 Foundation
You will be Found: The Search of Answers in Rare Disease
Peter White, PhD
Senior Director, Institute for Genomic Medicine
Nationwide Children’s’ Hospital
Supporting your Child Coping with a Rare Disease
Alana Goldstein-Leever, PsyD
Psychologist, Nationwide Children’s Hospital
Rare Disease Care in Public Health
Murugu Manikam, MD
Genomic Medicine, Nationwide Children’s Hospital
Ohio Rare Disease Advisory Council Member
Family Panel
Questions? E-mail [email protected].
