The Rare Disease Day website describes Rare Disease Day as, “the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.”
The annual event will be held on February 28, 2022.
For more information: https://www.rarediseaseday.org/