REGISTRATION is free to all attendees. The conference will be conducted on the Zoom platform and all attendees must have access to the Internet. Everyone must register for the conference.
Registration deadline is Friday, July 8, 2022
Registration Link: https://www.research.net/r/FCHKKQV
PRELIMINARY SCHEDULE All times in Central Daylight Time (CDT)
1:00 pm – 1:05 pm
Welcome and Introductions: Joyce A. Kullman, VF Executive Director
1:05 pm – 1:45 pm
Updates on Treatments for Vasculitis (AAV, TA, PAN)
Vidya Sivaraman, MD, Nationwide Children’s Hospital, Columbus, Ohio
Updates on Research: PedVas, CTP, and the VPPRN, Evaluation of Disease Activity
Jessica Bloom, MD, Pediatric Rheumatology, Childrens’ Hospital Colorado, Anschutz Medical Campus, Aurora
Medications: Pediatrics vs. Adults (New Medications on the Horizon)
Linda Wagner-Weiner, MD, MS, Clinical Associate Professor of Pediatrics, University of Chicago Medicine
1:45 pm – 2:00 pm Short Break
2:00 pm – 2:45 pm
Panel Discussion: Medication compliance, mental health concerns, school/vaccines/Covid
Vidya Sivaraman, MD, Nationwide Children’s Hospital, Columbus, Ohio
Camille Wilson, MD, Nationwide Children’s Hospital, Columbus, Ohio
Chloe Freeman, MD, Nationwide Children’s Hospital, Columbus, Ohio
3:00 pm – 4:00 pm
Breakout Sessions Attendees will choose a breakout session to join and introduce themselves (name/location/diagnosis/reason why they are participating)
Breakout Room #1: For children (under age 13)
Living with vasculitis
Taking medications
Talking to friends about vasculitis
Managing vasculitis at school
Breakout Room #2: For adolescents and young adults (14 to college age)
Transition, reproductive health, dating, drinking/drugs
Psychosocial issues / mental health: Depression/anxiety
College/HS, applying for a job
Breakout Room #3: For Parents
Family stressors (financial; sibling rivalry); Caretaker fatigue
Transition of your child from pediatrics to the adult world
Developing a parent’s group
4:00 pm – 4:30 pm
Conference Closing Act: Relaxation/Breathing Exercises/Yoga
Brandon Hudgins, BA, MS, Jamestown, North Carolina
Kalen Larson, MA, VF Director of Communications
4:30 pm
Wrap-up and Goodbye
REGISTRATION is free to all attendees. The conference will be conducted on the Zoom platform and all attendees must have access to the Internet. Everyone must register for the conference.
Registration deadline is Friday, July 8, 2022
Registration Link: https://www.research.net/r/FCHKKQV
Thank you to our sponsors!
