What is a rare disease? Any disease disorder, illness or condition affecting fewer than 200,000 people in the United States is considered rare.
Did you know? Rare diseases are not so rare: there are 7,000 rare diseases & disorders that combined affect 30 million Americans–1 in 10 of us–and more than half are children.
People with rare diseases have tremendous unmet needs, including misdiagnosis, a long time to finally receive a correct diagnosis, and when they do, 95% have no treatment with ZERO CURES.
Rare Disease Day® takes place on the last day of February each year. The main objective is to raise awareness with the general public and decision-makers about rare diseases and their impact on patients’ lives.
The global theme for Rare Disease Day 2017 is research. Research brings hope to people living with rare diseases and with your support, you can help make a difference in rare disease research. Please donate today!