KU.Conference.2016.Crowdshot2017 Vasculitis Foundation Patient & Family Vasculitis Regional Conference

Registration fee:  $30/person
Registration deadline:  January 31, 2017
Click here to register.

In Partnership with
The Johns Hopkins Vasculitis Center and the NIAMS Vasculitis Translational Research Program

8:00 a.m. – 4:30 p.m. (Program starts at 9:00 a.m.)

Bethesda North Marriott Hotel, 5701 Marinelli Road, North Bethesda, MD  20852

February 4, 2017

8:00 a.m. – 9:00 a.m.
Registration and Continental Breakfast

9:00 a.m. – 9:15 a.m.
Welcome and Introductions
Peter Grayson, MD, MSc, VF Board Member
Head, Vasculitis Translational Research Program, NIAMS

9:15 a.m. – 9:45 a.m.
Pathogenesis of Vasculitis – Why did I get vasculitis?
Eric Gapud, MD, Ph.D., Johns Hopkins Rheumatology

9:45 a.m. – 10:15 a.m.
Management of Upper Airway Symptoms in Vasculitis
Marcela Ferrada, MD, NIAMS Rheumatology Training Program

10:15 a.m.  – 10:45 a.m.
Morning Break

10:45 a.m. – 11:15 a.m.
Steroids in Vasculitis:  A User’s Guide
Kaitlin Quinn, MD, Georgetown University Hospital, Department of Rheumatology

11:15 a.m. – 11:45 a.m.
Role of exercise/management of a Chronic Illness
Rebecca Manno, MD, MHS, Assistant Director, The Johns Hopkins Arthritis Center

11:45 a.m. – 12:00 noon
Vasculitis Patient-Powered Research Network (V-PPRN) Update
Kalen Young, Network Manager, Vasculitis Foundation

12:00 noon – 1:15 p.m.
Lunch

1:15 p.m. – 2:00 p.m.
Unmet Needs in Small and Large Vessel Vasculitis: One size Does not Fit All
Peter Grayson, MD, MSc, VF Board Member
Head, Vasculitis Translational Research Program, NIAMS

2:00 p.m. – 2:30 p.m.
Recognition and Management of Kidney Disease
Geetha Duvuru, MD, Division of Nephrology, The Johns Hopkins Vasculitis Center

2:30 p.m. – 3:00 p.m.
Vasculitis Around the World
Sree Banarjee, MD, Vasculitis Translational Research Program, NIAMS

3:00 p.m. – 3:15 p.m.
Afternoon Break

3:15 p.m. – 3:45 p.m.
What matters to patients with vasculitis
Elaine Novakovich, BSN, RN, Vasculitis Translational Research Program, NIAMS

3:45 p.m. – 4:30 p.m.
Not-for-ready for Prime time:  Therapies for Vasculitis
Phil Seo, Director, The Johns Hopkins Vasculitis Center

4:30 p.m.    Wrap-up and Goodbye