Extraordinary Patients

Positivity, Perseverance Inspires Other Young Adults in Vasculitis Community

This summer’s International Vasculitis Symposium in Bloomington, Minnesota, marked another successful gathering of young adults and continued the growth of our community. While it was great to see old friends again, I was reminded of how this disease continues to impact new people every year, and how scary and daunting…...

Read more

Connection at VF Symposium Eases Isolation of Takayasu’s Arteritis

Loneliness is a common feeling among patients with vasculitis. When you find someone else on a similar path, it can help ease the isolation. That’s what happened to Dedra DeMarco and Devri Velazquez, who met at the 2019 International Vasculitis Symposium in July and discovered they share a lot in…...

Read more

Takayasu’s Patient Desiree Kim Invites Vasculitis Patients to Consider Qigong

Are you a warrior? No doubt, you are. We are all unique warriors, on this journey of journeys with a vasculitis diagnosis. The kind of warriors that despite pain, scars, and drudging, we keep going, keep fighting, keep living. Yet, at times, on this mountainous journey we feel powerless, defeated…...

Read more