Central Nervous System Vasculitis (CNS)

VF Announces 2023 V-RED Winners

It’s been a year of surprises for our Vasculitis Recognizing Excellence in Diagnosis (V-RED) award program. We have two winners who tied for first place, two winners who received honorable mentions, and this is the first year we’ve had a winner from Germany and Saskatoon, Canada. This is the 10th…...

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Brett Hack Vasculitis Charities: Raising Awareness of This Rare Disease

In 2012 Terry Hack’s son, Brett, had a grand mal seizure that came out of the blue. Several tests were done but there was no diagnosis. He was placed on anti-seizure medication for over a year, and 14 months after his first seizure he developed a severe headache, sinus infection and…...

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For Yanique, it’s About Holding on to Hope

Yanique was just 9 years old when she was diagnosed with central nervous system (CNS) vasculitis—a rare inflammatory blood vessel disorder of the brain and spinal cord, which make up the central nervous system. It’s a serious condition in which the inflamed vessels can block the flow of oxygen to…...

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