Coronavirus: Weathering the Storm Together

As the coronavirus crisis unfolds at a rapid pace, we would like to express our stalwart commitment to closely follow developments in the situation, particularly those that have specific implications for the vasculitis community and  bring you the most accurate information.

We stand in solidarity with everyone affected by the pandemic. We are concerned for all of our patients, families, friends, and co-workers⏤and for the many dedicated medical professionals caring for patients impacted by the disease. We’re actively updating our website, and talking with our vasculitis experts.

Explore below for resources and information.

As you do your own research for information, please make sure to note the date of publication as information is continually being updated. 

Voices from Our Community: We Understand. We’re in this Together

The Vasculitis Foundation is Here for You

A message from the VF Board of Directors President, Suzanne DePaolis

Special Episode of The Ride Podcast

Sara Amodio’s Podcast Episode on the Coronavirus

What We Do Today, Impacts Our Tomorrow

Patients like Kathy are asking everyone to do their part to #FlattenTheCurve

Social Distancing is Everyone’s Responsibility

Immune compromised individuals like Katrina, are at higher risk of serious infection. Everyone is responsible for social distancing.

Your Actions Matter. Stay Safe and Follow the Guidelines

Your healthcare provider is coming to work for you. Thank them by staying home.

You Don’t Have to Look High-Risk to Be High-Risk

Thank you for helping everyone by following CDC guidelines and social distancing.

You Can Help Protect Me! 

You can protect me and other immune-compromised individuals by staying home.

Special Podcast: Staying Positive During COVID-19

In this special Vasculitis Foundation-produced episode, Ben visits with Dr. Susan Wilson, a retired Emergency Room Physician and current Life Coach.

Do YOU have a message to share?

We are collecting patient voices to bring awareness about the importance of social distancing, the potential impact of COVID-19 on people with are immune-compromised, and flattening the curve. Email your video to the VF  [email protected].

We Want to Hear From You

Practicing social distancing does not have to mean social isolation. We want to hear from you during the latest public health threat. How are you getting through this challenging time? Do you have a suggestion for other members of the vasculitis community? We would love to share your suggestions which might help other patients and their families. Email us at [email protected].

Stop the Noise. Get the Facts

It’s easy to experience information overload with each breaking headline. We encourage you to reach out to your medical team if you have specific concerns about your own health.

We recommend the following reliable sources of information:

The Basics: What You Need To Know

Click any box below to access the resource.

Vasculitis Experts Answer Your Questions

Tanaz A. Kermani, MD 

The VF has received a tremendous number of questions from our community.  We compiled all the questions we received and sent the  most-frequently asked to our physician-investigators specializing in vasculitis for answers.  To learn more, click HERE.

 

 

 

Information if  You are Immune-Compromised

We understand the special anxieties, questions, and stress for our community, especially those taking immune suppressive medicines like biologic drugs.  The populations likely to be at higher risk of developing severe infections are patients with rheumatic diseases, including vasculitis. We will continue to gather information and consult our medical experts to answer your questions with accurate information.

Situation Reports

Novel Coronavirus

A short video by the World Health Organization about the coronavirus.