Coronavirus: Weathering the Storm Together
As the coronavirus crisis unfolds at a rapid pace, we would like to express our stalwart commitment to closely follow developments in the situation, particularly those that have specific implications for the vasculitis community and bring you the most accurate information.
We stand in solidarity with everyone affected by the pandemic. We are concerned for all of our patients, families, friends, and co-workers⏤and for the many dedicated medical professionals caring for patients impacted by the disease. We’re actively updating our website, and talking with our vasculitis experts.
Explore below for resources and information.
As you do your own research for information, please make sure to note the date of publication as information is continually being updated.
Vasculitis Experts Answer Your Questions
The VF has received a tremendous number of questions from our community. We compiled all the questions we received and sent the most-frequently asked to our physician-investigators specializing in vasculitis for answers. To learn more, you can read our expert response HERE or watch our newly recorded Q&A with Dr. Kenneth Warrington.
The Vasculitis COVID-19 Project: A patient-powered study of the Autoimmune Research Collaborative
We have been working with our research partners in the Autoimmune Research Collaborative to conduct a vasculitis and autoimmune COVID-19 patient-powered study.
This project is helping researchers, clinicians, and other patients better understand how people with vasculitis are dealing with COVID-19/the novel coronavirus. We are no longer enrolling new participants but we will continue to report our findings as they become available.
Voices from Our Community: We Understand. We’re in this Together
The Vasculitis Foundation is Here for You
A message from the VF Board of Directors President, Suzanne DePaolis
Special Episode of The Ride Podcast
Sara Amodio’s Podcast Episode on the Coronavirus
What We Do Today, Impacts Our Tomorrow
Patients like Kathy are asking everyone to do their part to #FlattenTheCurve
Social Distancing is Everyone’s Responsibility
Immune compromised individuals like Katrina, are at higher risk of serious infection. Everyone is responsible for social distancing.
Your Actions Matter. Stay Safe and Follow the Guidelines
Your healthcare provider is coming to work for you. Thank them by staying home.
You Don’t Have to Look High-Risk to Be High-Risk
Thank you for helping everyone by following CDC guidelines and social distancing.
You Can Help Protect Me!
You can protect me and other immune-compromised individuals by staying home.
Special Podcast: Staying Positive During COVID-19
In this special Vasculitis Foundation-produced episode, Ben visits with Dr. Susan Wilson, a retired Emergency Room Physician and current Life Coach.
Do YOU have a message to share?
We are collecting patient voices to bring awareness about the importance of social distancing, the potential impact of COVID-19 on people with are immune-compromised, and flattening the curve. Email your video to the VF [email protected].
The Basics: What You Need To Know
Click any box below to access the resource.
Information if You are Immune-Compromised
We understand the special anxieties, questions, and stress for our community, especially those taking immune suppressive medicines like biologic drugs. The populations likely to be at higher risk of developing severe infections are patients with rheumatic diseases, including vasculitis. We will continue to gather information and consult our medical experts to answer your questions with accurate information.
EULAR Guidance for patients COVID-19 outbreak
European League Against Rheumatism (EULAR)
What to know about rheumatic disease and the COVID-19 coronavirus.
Hospital for Special Surgery
COVID-19 (coronavirus) – Update for British Society of Rheumatology members
British Society for Rheumatology
Situation Reports
Novel Coronavirus
A short video by the World Health Organization about the coronavirus.
