Coronavirus: Weathering the Storm Together
As the coronavirus crisis unfolds at a rapid pace, we would like to express our stalwart commitment to closely follow developments in the situation, particularly those that have specific implications for the vasculitis community and bring you the most accurate information.
We stand in solidarity with everyone affected by the pandemic. We are concerned for all of our patients, families, friends, and co-workers and for the many dedicated medical professionals caring for patients impacted by the disease. We’re actively updating our website, and talking with our vasculitis experts.
Explore below for resources and information.
As you do your own research for information, please make sure to note the date of publication as information is continually being updated.
February 8, 2021 Update: Information from the American College of Rheumatology Regarding Vaccination Against COVID-19
The American College of Rheumatology (ACR) continues to provide updates on the development of vaccines and treatment of Covid-19 for patients with rheumatologic diseases.
On February 8 2021, the ACR released its COVID-19 Vaccine Clinical Guidance Summary for Patients with Rheumatic and Musculoskeletal Diseases. The summary was developed the ACR COVID-19 Vaccine Clinical Guidance Task Force. Click here to access.
Vasculitis Experts Answer Your Questions
Monday, December 14, 2020 @ 06:00 PM Eastern Time (US and Canada)
COVID-19: A Year-End Update
In our fourth and final COVID webinar for 2020, Dr. Anisha Dua, Dr. Alex Villa-Forte, and Dr. Kevin Byram provide an update about the COVID-19 health crisis. They discuss the latest information available concerning vaccinations, and treatments.
Recorded October 19, 2020
COVID-19 Update
In this third webinar in our series about the COVID-19 health crisis we tackle some of the latest questions that patients with vasculitis are asking our medical professionals.
Recorded September 9, 2020
Vasculitis and Covid-19 Q&A Webinar
Is COVID-10 a vascular illness? What is the status for developing a vaccine for COVID-19? Is the virus being treated with steroid therapy? In this webinar, Dr. Anisha Dua, and Dr. Sebastian Sattui answer these questions submitted from patients concerning the global pandemic.
Recorded September 3, 2020
Vasculitis and Emotional Health
We all know how vasculitis can affect us physically, but we’re not always prepared how it may affect us emotionally. In this segment, Dana DeMoulin, LCSW, Sara Baird Amodio, MSW, EdD, and webinar host, Kathy Olevsky, talk about how a diagnosis can impact our emotional well-being.
August 14, 2020
Effective Strategies for Virtual Telehealth Visits
One of the ways the COVID-19 health crisis has impacted our lives is through a renewed reliance on telemedicine and virtual visits instead of an in-person exams with a medical provider. In this fascinating webinar, Dr. Ronald Falk discusses the pros and cons of telemedicine.
August 14, 2020
The Rise of Telehealth in the Era of Covid-19
Is telehealth the wave of the future? How do patients feel about it? Watch this interesting webinar to learn about a study trying to understand the telehealth experience for patients with autoimmune disease. Dr. Maria Danila, and Dr. Michael George discuss the findings of a survey that looks at the use of telehealth and virtual medical visits.
Recorded August 10, 2020
Vasculitis and Covid-19 Update
As the COVID-19 crisis continues to unfold, patients with vasculitis have more questions, concerns, and a need to get the latest, reliable information about this global pandemic. As part of its patient education initiative, the VF hosted this special, live webinar featuring a panel of medical experts led by Anisha Dua, MD, MPH, Director, Northwestern Vasculitis Center.
Recorded August 3, 2020
Vasculitis and Vaccines
In this webinar, Dr. Eric Ruderman gives both an overview explaining what patients with vasculitis need to know about vaccines, and an update about about the development of a potential vaccine for the COVID-19 virus.
Recorded May 23, 2020
What We Know and What We Don’t Know: Vasculitis and COVID-19
The COVID-19 pandemic has generated many questions not only among the general public, but especially for high-risk patients who are being treated with immune suppressing medications. In this exclusive VF Road to Wellness Webinar, a panel of medical specialists address many of the questions being asked by patients with vasculitis during this global health crisis.
The Basics: What You Need To Know
Click any box below to access the resource.
Information if You are Immune-Compromised
We understand the special anxieties, questions, and stress for our community, especially those taking immune suppressive medicines like biologic drugs. The populations likely to be at higher risk of developing severe infections are patients with rheumatic diseases, including vasculitis. We will continue to gather information and consult our medical experts to answer your questions with accurate information.
EULAR Guidance for patients COVID-19 outbreak
European League Against Rheumatism (EULAR)
What to know about rheumatic disease and the COVID-19 coronavirus.
Hospital for Special Surgery
COVID-19 (coronavirus) – Update for British Society of Rheumatology members
British Society for Rheumatology
Situation Reports
Novel Coronavirus
A short video by the World Health Organization about the coronavirus.
Voices from Our Community: We Understand. We’re in this Together
The Vasculitis Foundation is Here for You
A message from the VF Board of Directors President, Suzanne DePaolis
Special Episode of The Ride Podcast
Sara Amodio’s Podcast Episode on the Coronavirus
What We Do Today, Impacts Our Tomorrow
Patients like Kathy are asking everyone to do their part to #FlattenTheCurve
Social Distancing is Everyone’s Responsibility
Immune compromised individuals like Katrina, are at higher risk of serious infection. Everyone is responsible for social distancing.
Your Actions Matter. Stay Safe and Follow the Guidelines
Your healthcare provider is coming to work for you. Thank them by staying home.
You Don’t Have to Look High-Risk to Be High-Risk
Thank you for helping everyone by following CDC guidelines and social distancing.
You Can Help Protect Me!
You can protect me and other immune-compromised individuals by staying home.
Special Podcast: Staying Positive During COVID-19
In this special Vasculitis Foundation-produced episode, Ben visits with Dr. Susan Wilson, a retired Emergency Room Physician and current Life Coach.
Do YOU have a message to share?
We are collecting patient voices to bring awareness about the importance of social distancing, the potential impact of COVID-19 on people with are immune-compromised, and flattening the curve. Email your video to the VF [email protected].
ENROLLMENT IS CLOSED. THANK YOU TO ALL WHO ARE PARTICIPATING IN THE YEAR-LONG STUDY.
The Vasculitis COVID-19 Project: A patient-powered study of the Autoimmune Research Collaborative
We have been working with our research partners in the Autoimmune Research Collaborative to conduct a vasculitis and autoimmune COVID-19 patient-powered study.
This project is helping researchers, clinicians, and other patients better understand how people with vasculitis are dealing with COVID-19/the novel coronavirus. We are no longer enrolling new participants but we will continue to report our findings as they become available.
