Stories

A Family’s Personal Journey Through Vasculitis

In life we often find that while not every story has a happy ending, we can learn from others’ experiences and hold on to hope. In the context of the vasculitis journey, we can hope for an early diagnosis, better treatments, advanced research and, ultimately, raise awareness. This is the…...

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Pinochle Night Brings Friends Together During Pandemic

By Fran Crotty My 85 year old mother splits her time between living at her Florida condo in the cool months and her Long Island, New York condo in the warm months. When in Florida, she plays in several bridge games each week. My brothers and sister have always been…...

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Medical Education is a Core Value at UCSF’s Vasculitis Clinic

The uncommon or rare nature of vasculitis can unfortunately lead to delays in diagnosis and treatment. This is an important reason why ongoing medical education is essential. As more physicians learn about these diseases, better care can be provided for patients with vasculitis. Educating future rheumatologists and internists is a…...

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VF Board of Directors Welcomes Caz Cazanov

In March 2019 we published a story about Caz Cazanov and her personal experience with vasculitis. After being diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA) in 2017, Caz was treated with high-dose steroids and cyclophosphamide infusions, and spent three weeks in the hospital and in a multidisciplinary rehabilitation facility. She…...

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New Vasculitis Program Opens at the Medical College of Wisconsin

Until now there were no vasculitis centers in Wisconsin. Many vasculitis patients there had to travel long distances to places such as Chicago, Illinois, or to the Mayo Clinic in Rochester, Minnesota, to find a specialist with a focus on vasculitis research and clinical care in their practice. To address…...

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