Stories

Brett Hack Vasculitis Charities: Raising Awareness of This Rare Disease

In 2012 Terry Hack’s son, Brett, had a grand mal seizure that came out of the blue. Several tests were done but there was no diagnosis. He was placed on anti-seizure medication for over a year, and 14 months after his first seizure he developed a severe headache, sinus infection and…...

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DIANNE SHAW | VF Hero to Patient 2022

Past VPPRN Co-Principal Investigator | Granulomatosis with polyangiitis (GPA) • 1995 Dianne is “a human dynamo constantly working to advance research and improve patients’ lives. Also, the best joke teller ever!”...

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JENNIFER PRICE | VF Hero to Patient 2022

VF Financial Coordinator • 2006 – Present “Over the last 16 years, Jennifer has shown a high level of integrity, a keen attention to detail, and a commitment to the accuracy of the organization’s finances which have helped the organization achieve its mission efficiently and effectively.”...

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SHANNON MORGAN | VF Hero to Patient 2022

VF Patient Support Coordinator • 2002 – Present Shannon is “compassionate and caring. Always willing to help anyone, anytime.”...

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ED BECKER | VF Hero to Patient 2022

VF Media Producer • 2002 – Present Ed is a “friend and champion to patients around the world.”...

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