When Samantha was diagnosed with GPA vasculitis in her 20s in 2005, she had one big question: Will I be able to become a mom? At the time, there was no research into vasculitis and pregnancy and, so, she and her husband were left with only one choice: try and…...
Painting Her Pain: How One Woman Uses Art to Tell Her Vasculitis Story
Dr. Shanali Perera was training to be a rheumatologist specializing in vasculitis when she started experiencing her own mysterious symptoms. The years it took for her to finally get diagnosed left her feeling disempowered, doubted, and like she had lost her identity. Today, Shanali is reclaiming control of her life…...
“We Need Each Other” – The Nourishing Power of Friendship in the Vasculitis Community
“This,” Suzanne McLaughlin said, “is a story about friendship.” Suzanne, a septuagenarian who’s living with GCA vasculitis, is determined to find life’s beauty. Despite her rare disease, she continues to explore the privilege of being alive, finding it repeatedly in art, in poetry, and, most importantly, in connection. In hard…...
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