Jessica’s Story

February 20, 2007 Takayasu's Stories, Uncategorized, Vasculitis Stories

Jeanne and John are members of the Education Awareness Council representing Takayasu arteritis. Their daughter, Jessica, was only 14 months old when she began to have troubling symptoms that would later prove to be Takayasu arteritis. Jessica developed unexplainable high fevers, ear infections, and respiratory problems including asthma. She had tubes…...

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Andrew’s Story

February 14, 2007 CNSV Stories, Uncategorized, Vasculitis Stories

Andrew is a member of the Education Awareness Council and represents Central Nervous System vasculitis, which he was diagnosed with in 2001 at the age of 58.  During his working years, Andrew was president and co-owner of a small plastic molding company in Cleveland, Ohio. He is now retired and…...

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Ken’s Story

February 14, 2007 EGPA Stories, Vasculitis Stories

My name is Ken. I’m better now, but I spent 12 months battling Churg Strauss Syndrome. I’m telling my story below in the hope that it will be helpful to others going through the same thing. Of course, these are just my personal recollections, they are not intended in any…...

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Building upon the collective strength of the vasculitis community, the Foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives.

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