VF staff

AARDA Announces New Autoimmunity Institute

The American Autoimmune Related Diseases Association (AARDA) is proud and honored to announce its collaborative partnership with Allegheny Health Network (AHN) and its new Autoimmunity Institute. The AHN Autoimmunity Institute, with its hub at West Penn Hospital in Pittsburgh, Pennsylvania, is an unprecedented venture focused on integrated multispecialty care and…...

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Dr. Amy Archer: Low-Dose Steroid Maintenance Therapy May Lessen Vasculitis Flares

Relapses of ANCA-associated vasculitis (AAV) have been linked to an increase in death, reduced kidney (renal) function and end-stage renal disease (ESRD). Long-term use of steroid medications is often used to help keep AAV under control. However, there are concerns about adverse effects of the medicines, so patients and physicians…...

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VPPRN Schedules Several Free Webinars, Public encouraged to participate

The VPPRN team has spent the past year coordinating a special collaborative research group known as the PCORnet Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (ASIS CRG). With our partners we have created a series of webinars for patients to learn about issues important to them. Glucocorticoids (steroids): A…...

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VPPRN Continues to Grow Beyond Expectations As it Studies Data Related to Vasculitis Patients

The Impact of Participation Thank you for your support and participation with the Vasculitis Patient-Powered Research Network! In three years our Network has grown to over 2,000 participants in 29 different countries representing 13 of the vasculitides. There is strength in numbers. Every participant in the VPPRN helps to make…...

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Beth Westbrook Joins the Vasculitis Foundation as Director of Development

The Vasculitis Foundation is pleased to introduce Beth Westbrook, who brings a career in nonprofit development leadership to the organization. Beth’s experiences—both personally and professionally—make her uniquely qualified to help the VF to grow stronger in the coming years. Dear Friends, As the newest addition to the team at the…...

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