VF staff

Organization Supports Vasculitis Patients and Research in the UK and Scotland

Lauren with her parents, Grant and Adrienne Currie   By Ed Becker One of the most important vasculitis awareness and advocacy organizations in Scotland and throughout the United Kingdom is the Lauren Currie Twilight Foundation (LCTF). Grant and Adrienne Currie established the LCTF in memory of their daughter, Lauren, who…...

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FDA Approves Label Update for Genentech’s Rituxan® (rituximab) in Granulomatosis with Polyangiitis and Microscopic Polyangiitis

October 19, 2018 — Genentech, a member of the Roche Group, announced today that the U.S. Food and Drug Administration (FDA) has approved an update to the Rituxan® (rituximab) label to include information on follow up treatment of adult patients with Granulomatosis with Polyangiitis (GPA) and Microscopic Polyangiitis (MPA) who…...

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Early Diagnosis: A Key Challenge for Adult and Pediatric Patients, Core Theme of 2018 Annual Appeal

By Ed Becker One of the most important ways to potentially improve patients’ outcomes is also one of the biggest clinical challenges for doctors. Working to improve the rate of delays in vasculitis diagnosis is an area of keen interest to researchers, and it’s also the core theme of the…...

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Artists Worldwide Paint 100 Portraits of Children With Rare Diseases, Now Being Widely Exhibited

By Catherine Lucas Any child illness is disruptive for a family, but having a child with a rare disease comes with its own set of challenges. Parents are faced with terrifying and obscure combinations of symptoms, and doctors are often just as mystified when it comes to diagnosing one of…...

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From Five Contacts to 80 Today: VF Expands Area Contact Program

Shannon Morgan, VF Patient Coordinator   By Ed Becker The growth of the Vasculitis Foundation’s Area Contact Program tells you why it’s such an important part of the organization’s patient support services. Approximately 30 years ago, the Vasculitis Foundation created an international network of volunteers to be contacts for patients…...

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