VF in the News

Aurelia’s Story

In the last almost 10 years since my diagnosis with primary Behcet’s disease there has been an enormous leap in the knowledge of where and what is affected.

I say primary because I was properly diagnosed very late in the progression of this illness and I have had other complications involving kidneys, gastrointestinal tract (secondary celiac diagnosis), nerves, heart etc…

The leap in knowledge about this illness is due in part to the leap in technology and communications between doctors of different nations.

A regular physician will maybe not even have one patient with Behcet’s disease in a long career. This is to give an indication of why it has been misdiagnosed and misunderstood for so long.

I am most grateful for the research being done by the Vasculitis Foundation although it leaves much to be desired in the field of alternative medicine research as not just an adjunct therapy…

So far a lot of emphasis and some research has been done to find new drugs hopefully with less side effects. The side effects of the drugs proposed for this class of illness are oftentimes as bad as the illness itself. Allergic reactions are another big problem with allopathic drugs, of which I have some hair-raising experiences!

Traditional Chinese medicine is what I attribute recovery from frequent bouts of flare-ups with this disease. I have had some recourse to allopathic drugs to quickly reduce inflammations, then continued my recovery through diet, herbal therapy and acupuncture.

Here are some links which I think are a little less sensational in their visual imagery… in case you are interested to know more about this:
American Behcet’s Disease Association
National Institute of Neurological Disorders and Stroke 

While waiting for non toxic therapy research, I do think that the Vasculitis Foundation is a worthwhile place to donate if you should so wish (mention my name please!).

Wishing you all the best of health and happiness!

~Aurelia