Supporting International Research for Rare Diseases

Supporting International Research for Rare Diseases

April 2011 Two recent workshops sponsored by the European Commission, Health Directorate, DG Research and Innovation, and the US National Institutes of Health Office of Rare Diseases Research (ORDR), focused on the development of international research initiatives of rare diseases. The first workshop, Fostering Trans-Atlantic Cooperation on Rare Diseases, was…...

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New Horizons Discovered for GCA Treatment

January 2011 By Cornelia Weyand, MD, PhD New research from Stanford University has identified three molecules that play a role in the abnormal immune responses of GCA. The discovery may lead to more effective ways of measuring disease activity and new GCA therapies. “This opens a whole new world of…...

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The Best Kept Secret in Health Care

November 2010 “Collecting your family health history is, indeed, the best kept secret in health care,” according to Dr. Charis Eng, a cancer geneticist at the Cleveland Clinic’s Genomic Medicine Institute. Dr. Eng says, “I view family health histories as back to the future.” Holiday gatherings can be a good…...

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SED Rate

November 2010 By Mayo Clinic staff Definition Sed rate, or erythrocyte sedimentation rate (ESR), is a blood test that can reveal inflammatory activity in your body. A sed rate test isn’t a stand-alone diagnostic tool, but the result of a sed rate test may help your doctor diagnose or monitor…...

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Vasculitis: Possible Mechanisms and Role of Autoimmunity

August 2010 By Nabih I. Abdou, MD, PhD Clinical Professor of Medicine Vasculitis Foundation Medical Consultant Presented at the All Star Vasculitis Symposium Long Beach,California Why do we need to know about mechanisms of vasculitis? To identify and target our treatment towards the main mechanism(s) that lead to vasculitis and…...

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