Advanced Patients and Families Conference!
Saturday, November 14, 2020

TARGET AUDIENCE:  Patients MORE than two years from diagnosis, although everyone is welcome!

DESCRIPTION:  This conference is for people who have been diagnosed for more than a couple of years.  You know about the treatments, you’ve read the research, you may be in remission, nearing remission, or coming out of remission.  What’s next?  Are you dealing with side effects from the medications?  Long-term consequences from a late diagnosis?

This conference will include talks by our medical experts and Q&A sessions.  The conference platform will give attendees access to inspiring patient stories and researcher spotlights. The conference will conclude with a selection of Zoom happy hours for networking and socializing.

Please note:  You must have access to a computer/tablet/mobile device and the Internet to participate. Instructions for login will be provided prior to the event via email alerts.

RECORDED SESSIONS:  The conference presentations will be recorded and after post-production, archived on the conference platform for up to 9 months after the conference.  Registered attendees will be able to view the presentations on the conference platform.  (Please note: The presentations will not be available on the VF website.)

The registration deadline is Wednesday, November 11, 2020:  5:00 p.m. Eastern!

Registration fee is $30 per household. (Up to 4 people can watch from each household.)
Credit card payment is required to complete the registration: Visa, MasterCard, American Express, and Discover.


INTERNATIONAL ATTENDEES: If you are registering from outside the United States, please email the VF office for instructions.

Substitution & Cancellations:  No refunds will be made, as the recorded sessions will be available for 9 months past the live event. Your registration may be transferred to another member of your family or friend or as a scholarship for another patient to participate. Please notify the Vasculitis Foundation at [email protected] to transfer your registration no later than Thursday, November 12, 2020.

Thank You Gift:  The first 50 paid registrants for this conference will receive a special VF Thank You Gift (1 gift per registered household) to enjoy before, during, and after the conference! (Shipping available in the US only due to the COVID-19 pandemic.)

The Vasculitis Foundation reserves the right to change this program without prior notice. Please note that speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.


10:30 a.m. Eastern

Virtual Conference Platform Opens:  Visit the Auditorium, Exhibit Hall, and Networking Lounge

11:00 a.m. – 11:15 a.m.
Program Begins

Welcome:  Join Our Journey for Knowledge and Hope
Jenn Gordon, PhD, Temple University

 11:15 a.m. – 11:45 a.m.

Special Considerations of the Lungs and Airways in Systemic Vasculitis
Ulrich Specks, MD, Professor of Medicine, Division of Pulmonary and Critical Care Medicine, Department of Internal Medicine, Mayo Clinic

11:45 a.m. – 12:15 p.m.

Emerging Management and Treatments in Systemic Vasculitis
Sharon Chung, MD, MAS,  Associate Professor, Director, Vasculitis Center, University of California, San Francisco

12:15 p.m. – 12:45 p.m.

Steroids 202:  Managing Long-term use of High Dose Steroids
Tanaz Kermani, MD, Associate Clinical Professor, Founder and Director, Vasculitis Program, University of California, Los Angeles

12:45 p.m. – 1:00 p.m.

Afternoon Break! Time to Stretch!

1:00 p.m. – 1:30 p.m.

The Future of Steroid Use: The Horizon for Steroid Replacement, Minimization in Systemic Vasculitis
Jason Springer, MD, Co-Director, Vasculitis Center, Vanderbilt University Medical Center

1:30 p.m. – 2:00 p.m.

Clinical Trials:  What’s on the Horizon, Engaging Patients in Research
Peter A. Merkel, MD, Professor of Medicine and Epidemiology, Chief, Division of Rheumatology, University of Pennsylvania

2:00 p.m. – 2:15 p.m.

Final Comments and Instructions for the Zoom Happy Hours
Joyce A. Kullman, Executive Director, Vasculitis Foundation

2:15 p.m. – 3:15 p.m.

Zoom With Us! Join Us for Happy Hour
We will have several rooms set up for networking and discussion

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