Join us July 16th for our 2022 Vasculitis Virtual Conferences

REGISTRATION is free to all attendees.  The conference will be conducted on the Zoom platform and all attendees must have access to the Internet.  Everyone must register for the conference.

Registration deadline is Friday, July 8, 2022 

Registration Link:  https://www.research.net/r/FSV7XVB

PRELIMINARY SCHEDULE  All times in Central Daylight Time (CDT)

10:00 am – 10:05 am
Welcome and Introductions: Joyce A. Kullman, VF Executive Director

10:05 am – 10:30 am
Victory over Vasculitis Introduction:  Kalen Larson, MA, VF Director of Communications

10:30 am – 11:00 am
2022 Vasculitis & ANCA Workshop Report:  An International Review of Research and What it means for patients
Alvise Berti, MD, PhD, Vasculitis Center, Santa Chiara Hospital of Trento, Italy
Divi Cornec, MD, PhD, Service de Rhumatologie, Université de Brest, France
Anisha B. Dua, MD, Director, Vasculitis Center, Northwestern Medicine, Chicago, Illinois

11:00 am – 11:30 am
Vasculitis Patient-Powered Research (VPPRN) Network Update
Peter A. Merkel, MD, MPH, Chief, Division of Rheumatology, University of Pennsylvania
Jenn Gordon, PhD, VPPRN Co-Principal Investigator

11:30 am – 12:00 pm
Looking Forward – Meet Our Young Clinicians/Investigators
Kevin W. Byram, MD, Co-director, The Vanderbilt Vasculitis Center, Division of Rheumatology & Immunology, Nashville, Tennessee

12:00 pm
Wrap-up and Goodbye


Join Us for Vasculitis Trivial Pursuit Night!
Saturday, July 16, 2022
Time:  8:00 p.m. CDT
Registration for Trivial Pursuit is required:  https://www.research.net/r/FSGJS7M

REGISTRATION is free to all attendees.  The conference will be conducted on the Zoom platform and all attendees must have access to the Internet.  Everyone must register for the conference.

Registration deadline is Friday, July 8, 2022

Registration Link:  https://www.research.net/r/FCHKKQV

PRELIMINARY SCHEDULE  All times in Central Daylight Time (CDT)

1:00 pm – 1:05 pm
Welcome and Introductions: Joyce A. Kullman, VF Executive Director

1:05 pm – 1:45 pm
Updates on Treatments for Pediatric Vasculitis (AAV, PedVas/CTP)
This talk will provide an introduction to vasculitis in children, with a focus on ANCA-associated vasculitis (AAV), the PedVas registry and CTP treatment study for pediatric AAV and the updated VF website.
Vidya Sivaraman, MD, Pediatric Rheumatologist, Associate Professor of Clinical Pediatrics at The Ohio State University, Nationwide Children’s Hospital, Columbus, Ohio

Medications: Current Medical Treatment and Advances in Treating Childhood Vasculitis
This talk will focus on current medications and advances in treating pediatric systemic vasculitis.
Ellen Jo. Go, MD, Pediatric Rheumatologist, Riley Children’s Heath Hospital

Patient Engagement:  Research (VPPRN) and Community
This talk will focus on ways that patients can get involved in the vasculitis community and participate in research.
Jessica Bloom, MD, MSCS, Pediatric Rheumatologist, Children’s Hospital of Colorado, Assistant Professor of Pediatrics, University of Colorado

1:50 pm – 2:00 pm      Short 10-minute Break

2:00 pm – 2:45 pm
Panel Discussion:  “Living with Vasculitis: Mental Health and Education”
This talk will focus on educational needs that children with vasculitis may encounter, educational resources that may help support a child with learning needs, and ways that parents can advocate for their children.
Vidya Sivaraman, MD, Associate Professor of Clinical Pediatrics at The Ohio State University, Nationwide Children’s Hospital, Columbus, Ohio
Camille S. Wilson, PhD, Pediatric Neuropsychologist, Psychiatry and Behavioral Health, Nationwide Children’s Hospital, Columbus, Ohio
Chloé Freeman, PsyD, Nationwide Children’s Hospital, Columbus, Ohio

2:45 pm – 3:00 pm      Short 15-minute Break

3:00 pm  – 4:00 pm
Breakout Sessions  Attendees will choose a breakout session to join and introduce themselves (name/location/diagnosis/reason why they are participating).

Bring your favorite stuffed or live animal, blanket or toy to the breakout session! Wear comfortable clothes!

Breakout Room #1:  For children (13 and under)
Jessica Bloom, MD, MSCS, and Chloé Freeman, PsyD
Taking medications (remembering, swallowing pills, needle phobia)
Talking to friends about vasculitis
Managing vasculitis at school

Breakout Room #2:  For adolescents and young adults (14 and older)
Vidya Sivaraman, MD, and Camille S. Wilson, PhD
Transition, reproductive health, dating, drinking/drugs
Psychosocial issues, mental health, depression/anxiety
College/high school, applying for a job

Breakout Room #3:  For Parents
Linda Wagner-Weiner, MD, and Kris Bargender (parent)
Family stressors (finances, sibling rivalry), caretaker fatigue
Transition of your child from pediatrics to adult care
Developing a parent group

4:00 pm – 4:30 pm
Conference Closing Act:  Relaxation/Breathing Exercises/Yoga
Brandon Hudgins, BA, MS, Jamestown, North Carolina
Kalen Larson, MA, VF Director of Communications
Katrina Bargender

4:30 pm
Wrap-up and Goodbye

REGISTRATION is free to all attendees.  The conference will be conducted on the Zoom platform and all attendees must have access to the Internet.  Everyone must register for the conference.
Registration deadline is Friday, July 8, 2022
Registration Link:  https://www.research.net/r/FCHKKQV

REGISTRATION is free to all attendees.  The conference will be conducted on the Zoom platform and all attendees must have access to the Internet.  Everyone must register for the conference.

Registration deadline is Friday, July 8, 2022 

Registration Link:  https://www.research.net/r/FSV7XVB

GAME STARTS AT 8PM CDT

Thank You to Our Conference Sponsors

Presenting Sponsor

GSK

Resilience Sponsor

Innovation Sponsor