Newly Diagnosed Patients and their Families Conference!
Saturday, October 31, 2020
TARGET AUDIENCE: Patients less than two years from diagnosis; their family members and friends
DESCRIPTION: Receiving a diagnosis of vasculitis can be overwhelming. Taking in the news, dealing with information overload, navigating medical appointments, and making decisions about treatment can be stressful.
This conference will provide helpful information for the newly diagnosed about working with your medical team, understanding lab and imaging tests, medications, the role of steroids, promising research studies, and opportunities to be a patient-partner in research. Join us on Zoom after the conference, to meet and network with other newly diagnosed patients.
The conference will include talks by our medical experts, Q&A sessions, inspiring patient stories, and researcher spotlights. The conference will conclude with a selection of Zoom happy hours for networking and socializing.
Please note: You must have access to a computer/tablet/mobile device and the Internet to participate. Instructions for login will be provided prior to the event via email alerts.
REGISTRATION FEE:$30 per household. (Up to four people can participate in the conference on one registration.) The registration fee includes all online content on Saturday, October 31, 2020, as well as access to the recorded sessions for 9 months after the conclusion of the live program.
The registration deadline is Thursday, October 29, 2020 at 5:00 p.m. Eastern
Credit card payment is required to complete the registration: Visa, MasterCard, American Express, and Discover.
If you live in the United States, please use the Registration form.
If you are registering from outside the United States, please email the VF office for instructions.
Substitution & Cancellations: No refunds will be made, as the recorded sessions will be available for 9 months past the live event. Your registration may be transferred to another member of your family or friend or as a scholarship for another patient to participate. Please notify the Vasculitis Foundation at [email protected] to transfer your registration no later than Thursday, October 29, 2020.
Thank You Gift: The first 50 paid registrants for this conference will receive a special VF Thank You Gift (1 gift per registered household) to enjoy before, during, and after the conference! (Shipping available in the US only due to the COVID-19 pandemic.)
The Vasculitis Foundation reserves the right to change this program without prior notice. Please note that speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made.
11:00 a.m. Eastern
Virtual Conference Platform Opens: Visit the Auditorium, Exhibit Hall, and Networking Lounge
11:30 a.m. – 11:45 a.m.
Welcome: Join Our Journey for Knowledge and Hope
Sara Baird Amodio, MSW, EdD, VF Board of Directors
11:45 a.m. – 12:15 p.m.
The Vasculitis Minions
Philip Seo, MD, Director, The Johns Hopkins Vasculitis Center, Associate Professor of Medicine
12:15 p.m. – 12:45 p.m.
Medical Team 101: Maximizing Your Available Resources
Sarah Goglin, MD, Assistant Professor, UCSF Rheumatology Department of Medicine
12:45 p.m. – 1:15 p.m.
Understanding Your Lab Tests and Imaging Results
Kevin W. Byram, MD, Co-Director, Vasculitis Program, Assistant Professor of Medicine, Division of Rheumatology & Immunology, Vanderbilt University
1:15 p.m. – 1:30 p.m.
Afternoon Break! Time to Stretch!
1:30 p.m. – 2:00 p.m.
Medications 101: The Alphabet Soup
Anisha B. Dua, MD, Director, Northwestern Vasculitis Center, Rheumatology, Associate Professor, Feinberg School of Medicine
2:00 p.m. – 2:30 p.m.
Tanaz A. Kermani, MD, Director of the Vasculitis Program, UCLA Rheumatology
2:30 p.m. – 3:00 p.m.
The Future of Steroid Use: The Horizon for Steroid Replacement, Minimization in Systemic Vasculitis
Jason M. Springer, MD, MS, Co-Director, Vasculitis Program, Vanderbilt University
3:00 p.m. – 3:30 p.m.
What Does Wellness Look Like in a Pandemic?
Leonard Calabrese, DO, R.J. Fasenmeyer Chair of Clinical Immunology, Theodore F. Classen, DO Chair in Osteopathic Research and Education
3:30 p.m. – 4:00 p.m.
What’s Next? Resources for Your Journey to Better Health
Peter Grayson, MD, M.Sc., Head, Vasculitis Translational Research Program, Associate Director NIAMS Fellowship Program
4:00 p.m. – 4:15 p.m.
Conference Wrap Up
4:15 p.m. – 5:00 p.m.
Zoom With Us! Join Us for Happy Hour
We will have several rooms set up for networking and discussion