Joyce A. Kullman, Executive Director
Joyce began volunteering for the Wegener’s Granulomatosis Support Group (now VF) in 1995, after her father was diagnosed with the disease in October 1994. In 1996 she began editing the bi-monthly newsletter when Marilyn Sampson, founder of the organization, was diagnosed with cancer. Joyce joined the board of directors in 1997 and coordinated the 1998, 2000 and 2002 Wegener’s Medical Symposiums. In February 2002 she was named executive director of the organization.

Jordan Crane Jordan Crane, Director of Development

Jordan has more than ten years experience in non-profit management and fundraising, most recently serving as the Director of Development for the Museum of Contemporary Art in Jacksonville, Florida.

Over the course of her career, Jordan has raised over $40-million to support the arts, the homeless, healthcare for the uninsured, neighborhood redevelopment and revitalization, and temporary, transitional and permanent housing. In 2005, she led a $3.5-million capital campaign to build an 18,000-square-foot medical/dental healthcare for the homeless facility and 2,000-square-foot homeless children’s facility in Jacksonville, Florida, both of which were completed in the spring of 2007.

As an active volunteer, she has served on the boards of the Association of Fundraising Professionals, the Jacksonville Community Council, Inc., Big Brothers Big Sisters and as event chair for multiple charitable and community events.

Mary Ann Quick, Member Support Coordinator

Mary Ann joined the organization in 2003 and processes all data entry, coordinates United Way and Matching Gift donations and email requests. She enjoys talking with people and being of help in anyway. Mary Ann is a mother of three and grandmother of eight and enjoys volunteering for the St. Pius X Alumni Committee. She is also a member of a Kansas City biking, camping and whitewater rafting group.

Donna Grant, Mail Support Coordinator

Donna processes all the mail correspondence and coordinates the informational packets. She is a mother of six, grandmother of 14 and great-grandmother of seven. She holds a Master of Arts degree in Interdisciplinary Studies and minors in Psychology and Substance Abuse and is a cancer survivor since 2002. Her hobbies include dancing, reading, Christian counseling of families, couples, individuals, etc. and helping others.

Shannon Morgan, New Patient Support Coordinator

Shannon works from her home in Florida and communicates with new patients and family members and coordinates the Chapter/Support Groups and Area Contacts. When she is not working, she enjoys helping minorities learn to read, write and speak English as a second language.

Jennifer Price, Financial Coordinator

Jennifer joined the organization in 2006 and handles the accounting and financial duties. She is a graduate of Park University and holds a Bachelor of Arts degree in Accounting and Business Administration/Marketing. She is married and the mother of one daughter.