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Our Vision

Our Vision

The Vasculitis Foundation advocates for early diagnosis, leading edge treatment and ultimately a cure for all types of vasculitis.

Our Mission

The Vasculitis Foundation supports and empowers patients through education, awareness and research.

Who We Are

The Vasculitis Foundation (VF, formerly the Wegener’s Granulomatosis Association) was founded in 1986 by Marilyn Sampson, a Wegener’s patient and registered nurse. The original group had three members.

VF was established to alleviate the isolation that patients and their families experience when these rare life-threatening diseases affect them. VF helps patients and their families build a strong positive outlook.

VF now has over 4,000 members and is the largest patient support group and the only international organization for people with Wegener’ and other vasculitides. As we celebrate our 22th Anniversary, we want to build on past successes as we work to ensure a positive future for our patients and patients yet to be diagnosed.

Dues and donations are VF’s largest sources of underwriting for our many services. Through our website, newsletter, brochures, informational materials, medical consultants, chapters and support groups, we raise awareness and educate our patients, family members and friends.
If you are a patient and cannot afford to pay dues, please let us know. We will waive payment, because it is essential that you have access to the latest information on vasculitis and VF activities.

VF is a registered 501 (c)(3) non-profit organization; our dues and donations are tax-deductible.

Services include:
Information Brochures

  • Bi-Monthly Newsletter
  • Telephone 800 Number
  • Patient Packets
  • Physician Packets
  • Medical Consultation Staff
  • Speaker's Bureau
  • International Symposia
  • Symposia Tapes