VF Board President Talks About Personal Impact of Vasculitis on Rare Disease Day 2017

VF Board President, Karen Hirsch, appeared on Good Morning Washington, WJLA in Washington D.C. to discuss the importance of raising awareness about all rare diseases on Rare Disease Day 2017.   Karen’s son, Michael, is a patient with GPA Wegener’s Vasculitis.   Karen’s message was that she knows from personal experience the impact of a rare disease, but rare disease affects thousands of people so it’s critical to raise awareness and encourage more funding  and research for all rare diseases.

http://wjla.com/features/good-morning-washington/rare-disease-week-on-capitol-hill-spotlight-on-the-vasculitis-foundation

Vasculitis Foundation

The Vasculitis Foundation is the international organization for patients with vasculitis, their families, friends and the health care professionals who care for them.


FDA Approves Genentech’s Actemra® for Giant Cell Arteritis

Genentech, a member of the Roche Group, announced today (May 22, 2017) that the U.S. Food and Drug Administration (FDA) has approved Actemra® (tocilizumab) subcutaneous injection for the treatment of more »

Brandon Hudgins to Receive NORD Rare Impact Award at May 18th Ceremony

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Vasculitis Update 2017 CME Course: Chicago, June 24

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Main Line Health Medical Professional Wins National Award for Early Diagnosis of Rare Disease

The Vasculitis Foundation (VF) announces the winner of its 2017 Recognizing Excellence in Diagnostics (RED) Award.  The V-RED Award is presented annually to a medical professional who made a quick diagnosis of more »

Wisdom of a Ferocious Patient Advocate

Celeste Lee, cherished wife, sister, daughter, mother, faithful friend, and passionate patient advocate, died at age 51 from the autoimmune disease vasculitis, surrounded by family and friends, both near and more »