VF Board President Talks About Personal Impact of Vasculitis on Rare Disease Day 2017

VF Board President, Karen Hirsch, appeared on Good Morning Washington, WJLA in Washington D.C. to discuss the importance of raising awareness about all rare diseases on Rare Disease Day 2017.   Karen’s son, Michael, is a patient with GPA Wegener’s Vasculitis.   Karen’s message was that she knows from personal experience the impact of a rare disease, but rare disease affects thousands of people so it’s critical to raise awareness and encourage more funding  and research for all rare diseases.

http://wjla.com/features/good-morning-washington/rare-disease-week-on-capitol-hill-spotlight-on-the-vasculitis-foundation

Vasculitis Foundation

The Vasculitis Foundation is the international organization for patients with vasculitis, their families, friends and the health care professionals who care for them.


Introducing our 2017-2018 VCRC-VF Fellow

Kaitlin Quinn, MD, is the recipient of the 2017 VCRC-VF Fellowship.  She received her medical degree from New York Medical College in Valhalla, New York.   She completed her Internal Medicine more »

FDA Approves Genentech’s Actemra® for Giant Cell Arteritis

Genentech, a member of the Roche Group, announced today (May 22, 2017) that the U.S. Food and Drug Administration (FDA) has approved Actemra® (tocilizumab) subcutaneous injection for the treatment of more »

Brandon Hudgins to Receive NORD Rare Impact Award at May 18th Ceremony

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Vasculitis Update 2017 CME Course: Chicago, June 24

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Main Line Health Medical Professional Wins National Award for Early Diagnosis of Rare Disease

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