Vasculitis Stories Library

What does living with vasculitis mean for you?

Members of our vasculitis community learn from each other every day. We encourage you to share your thoughts about the impact that vasculitis has had on your life and the lives of your loved ones. We want to hear from everyone – patients, family members, medical professionals and researchers.

There are two ways to share your story or feel free to combine:

Video:  The VF YouTube Awareness channel features videos submitted by members of our vasculitis community.

Click here to learn more about submitting your Extraordinary Story Video, including instructions on how to film your video, Release Form, and how to upload your video.

Below is a list of the most recently posted stories. You can also use the following links to jump to stories concerning a particular disease:


The Vasculitis Foundation is most grateful to authors who have shared their personal experiences with vasculitis. The reader should be aware that these contributions are personal reflections by the writer and do not represent medical scientific statements. Therefore, such information while being accurate perceptions of the writer, may not be scientifically accurate and may not apply to other patients.