ALABAMA
Alabama Chapter
Lenda Presley
Arab, AL 35016
256-586-6774
lpresley@otelco.net

Merlin Baker
695 Co. Road 45
Hartford, AL 36344
334-588-3426

Vicki Tyler
1004 Rhodes Street
Hartsell, AL 35640
256-773-5647

 

ALASKA
Rick Weibel & Jan St. Peters
PO Box 323
Healy, AK 99743
907-683-2511
lakeotto@mtaonline.net

Brian Lederhos
Anchorage, AK
907-229-0631
blederhos@gmail.com

 

ARIZONA
Phoenix, AZ Metropolitan Area Chapter
Carole Studdard
20020 N. Willowcreek Circle
Sun City, AZ 85373
623-974-9324
netwkr90@aol.com

SE Arizona Chapter
Kathleen Holland
Sierra Vista, AZ 85650
520-508-7166
memkat1@cox.net

 

ARKANSAS
Arkansas Chapter
John Cooksey
Hot Springs, AR 71901
501-318-4117
television@gmail.com

CALIFORNIA

Northern California Chapter
Christy Abele
Novata, CA 94949
415-883-7025
abele@vasculitisfoundation.org

Orange County Chapter
Babette House
Cypress, CA 90630

Jean Klein
Los Angeles, CA
310-319-9237
jeankjea@msn.com

Sacramento Chapter
Hedy Govenar
hgovenar@govadv.com
website: http://www.meetup.com/sac-vasculitis

San Diego Chapter
Linda Schneider
1465 Camino Lujan
San Diego, CA 92111
858-277-5591
windlass@san.rr.com

San Diego Chapter
Pat McFarlane
619-584-0109

Denise Burns LaRock
Orangevale, CA 95662
916-989-5619
denise6022@comcast.net

Central Coast, CA Chapter
Debbie Shibata
805-545-7921
debbieshibata@gmail.com

South Bay Area, CA Chapter
Lei Shura
San Jose, CA 95128
408-247-2636
lshura@att.net

Paulette Post Miller
Solvang, CA
805-688-0936
lloydsgrandma@hotmail.com

Gigi Chapin
Ventura, CA
805-642-8448
gigi.chapin@sbcglobal.net

COLORADO
Evergreen Chapter
Rick & Janet Spurgeon
8643 Gray Fox Dr.
Evergreen, CO 80439
303-679-8856
woodman61@q.com

 

CONNECTICUT
Donna Powell
7 Villa Louisa Road
Manchester, CT 06043
860-647-9707
donna@essexpartnership.com

Wendi Hunt
675-2 Newfield St.
Middletown, CT 06457
860-346-0167

Milford-New Haven, CT Chapter
Helene Jackson
Milford, CT 06460
203-877-2151
helenesj123@gmail.com

Linda Starr
80 Fairview Drive
South Windsor, CT 06074
860-644-1155

Cassandra Walker
32 Cynthia Lane
Middletown, CT 06457
860-343-7746
zaidac9@aol.com

Bridget Walker
Woodstock, CT 06281
860-928-2006
walkerbtac@yahoo.com

NY/NJ/CT Tri-State Chapter
Gail Schultz
36 Markham Rd.
Edison, NJ 08817
732-287-5248
gail1370@aol.com

 

DISTRICT of COLUMBIA (DC)
Baltimore-Washington, DC Chapter
Janet Bruchey
1218 Oakland Terrace Rd.
Baltimore, MD 21227
410-242-2801
janetb8546@aol.com

Quinn Smith
202-294-4554
quinnisha@archive.org

FLORIDA
Susan Giammarino
2871 Landover Blvd.
Spring Hill, FL 34608
352-683-8678

Ronald Landreth
3170 Fairways Dr.
Homestead, FL 33035
786-349-0644
satusg@aol.com

Opal Marchant
Mims, FL 32754
321-264-3954
R_marchant@bellsouth.net

Boynton Beach/SE Florida Chapter
Myrna Swart
6384 Long Key Lane
Boynton Beach, FL 33437
561-742-5883
Myrnaswart@bellsouth.net

Central Florida Chapter
Evelyn Silva
407-327-4837
blondie417us@yahoo.com

Jackie Ward
1650 SW 71 Place
Miami, FL 33155
305-261-1447
2wards@bellsouth.net

Jacksonville, FL Chapter
Chad Bearden
Jacksonville, FL 32204
904-415-8715
chadb@beardendesigns.com

Tampa Chapter
Norma Zayas-Lopez
Tampa, FL
813-626-9408

The Villages of Florida Chapter
Bob Sahs
The Villages, FL 32162
352-566-6774
aagolf@aol.com

 

GEORGIA
Atlanta Chapter
Jane and Joe Thomas
1316 Lark View Dr.
Lilburn, GA 30047
770-921-1907 or cell 404-849-7233
janemthomas@comcast.net or joevthomas@comcast.net
website: http://vasculitissupportgroupatlantachapter.memberlodge.org

William Kelly Canady
478-689-5441
kellycanady@yahoo.com

Sara Anderson
Lawrenceville, GA 30045
678-580-2639
saraandbabymikey@aol.com

Carolyn Letko
Lilburn, GA 30047
770-982-2874
morecaroline@aol.com

Connie Short
Lylery, GA 30730
706-895-3357 or 706-506-7334
shor822@aol.com

Diann Alford
Newnan, GA 30263
770-251-0453
diannrip12@aol.com

Shirley Yokum
504 Parkersburg Road
Savannah, GA 31406
912-355-3910
burntpot@aol.com

 

HAWAII
LC Morris
45-638 Halekou Place
Kaneohe, HI 96744
808-382-6266
lcmorrisjr@aol.com

 

IDAHO
Brucene Hill
Ashton,ID
208-652-3641

 INDIANA
Indianapolis, IN Chapter
Patricia Barker
765-401-0330
barker.patricia98@gmail.com

Kimberly Curry
Madison, IN 47256
Rickim76@yahoo.com

TreAnn Smith
4636 Aboite Lake Drive
Ft. Wayne, IN 46804
260-616-0558
smithsrandt@comcast.net

 

ILLINOIS
Tim Costin
1403 Haar Lane
Elk Grove, IL 60007
847-985-6050
timcostin@sbcglobal.net

Northern Illinois Chapter
Jennifer Laystrom-Naida
961 Hyacinth Lane
Bartlett, IL 60103
224-338-8313
nilvfchapter1@comcast.net

Chicago Chapter
CAVES (Chicago Area Vasculitis Education & Support)
Cindy Webber
Wheaton, IL 60187
Cndy_webber@yahoo.com
website: http://www.chicagovasculitis.com

Lincoln Land Chapter
Springfield, IL
Carolyn Austin
217-801-0617
irishlass204@yahoo.com

Alicia Perkovich - CSS only
La Grange, IL 60525
708-579-0566
alicia.perkovich@sbcglobal.net

 

IOWA
Omaha-Council Bluffs Chapter
Amy Frahm-Mildward
1061 State Street
Blair, NE 68008
402-426-8434
angusdr10@msn.com

Dar Skoda
Cresco, IA 52136
563-419-1435
johnanddarskoda@yahoo.com

Kevin Schares
333 4th St.
Washburn, IA 50706
319-240-3697
kschares@mchsi.com

 

KANSAS
Gary Huffman
Wichita, KS 67218
316-685-6396
gmhuffman@swbell.net

Kansas City Chapter
Jerry Niebaum
1573 N. 962 Rd.
Lawrence, KS 66046
785-842-3127
jniebaum@sunflower.com
website: http://vfkansas.blogspot.com

 

 

KENTUCKY
Carolyn Perkins
Louisville, KY 40205
502-456-1523

Donald Wendt
1516 Nutwood Ave.
Bowling Green, KY 42104
270-842-9571
dwendt10@insightbb.com

 

LOUISIANA
William Kuhn
115 Cherry Creek Drive
Mandeville, LA 70448
985-727-0335
wkuhn@bellsouth.net

 

MASSACHUSETTS
Boston Chapter
Peter Capizzo
6 Indian Ave.
Mattapoisett, MA 02739
508-758-6433
capizzo1@yahoo.com

Boston Chapter
Donna Martin
23 Betty Ann Lane
Dracut, MA 01826
Donna.martin@qualserv.net

Agawam, MA Chapter
Jane Bilodeau
Agawam, MA 01001
413-786-0815
janebilodeau@comcast.net

Elisa Spagnuolo
Pittsfield, MA 01201
413-443-4393
elisaspagnuolo@yahoo.com

Leslie Scott-Lysan
Takayasu's only
Wakefield, MA
781-246-3046
ljscotty@aol.com

 

MAINE
Maine Chapter
Dick Burns
PO Box 17 - 22 Cottage Street
Searsport, ME 04974
207-548-0059
barbdick65@gmail.com

 

MARYLAND
Baltimore-Washington, DC Chapter
Janet Bruchey
1218 Oakland Terrace Rd.
Baltimore, MD 21227
410-242-2801
janetb8546@aol.com

Quinn Smith
202-294-4554
quinnisha@archive.org

Margot Cook
1603 Myrtle Road
Silver Spring, MD 20902
301-593-4461

 

MICHIGAN
Mid Michigan Chapter
Shari Struck
989-725-7697
cbsfarms3@hotmail.com

Northern Michigan Chapter
Grace Eisen
10579 West Kelly Road
Lake City, MI 49651
231-394-1568
geisen@hughes.net

SE Michigan Chapter
Ken Snodgrass
29495 Sugar Spring Road
Farmington Hills, MI 48334
248-851-7618
nosvamos@twmi.rr.com

SE Michigan Chapter
Tina Tierney
64300 Tipperary Drive
Washington, MI 48095
586-336-0777
tinatierney@cavtel.net

 

MINNESOTA
Rochester Chapter
Vickey Roeder
Rochester, MN 55901
507-281-3692
viktrola@q.com

Rochester Chapter
Jeaneen Kolokythas
507-281-3692
jlk6654@q.com

Diane Rueb
250 NW 21st St., #5
Owatonna, MN 55060
507-451-6505
dicrue@hotmail.com

 

MISSISSIPPI
Jack Crosby
PO BOX 83, 214 Pine Street
Seminary, MS 39479
601-722-4481
jack-iris@att.net

 

MISSOURI
Springfield Chapter
Tonia Cantrell
PO Box 10821
Springfield, MO 65808
417-773-8671
tlcantrell16@sbcglobal.net

Richard Erickson
1305 Woodrail Ave.
Columbia, MO 65203
573-449-8489

Carolyn Landry
2725 Stonewall Station
St. Charles, MO 63303
636-928-6240
calandry@usa.net

Kansas City Chapter
Jerry Niebaum
1573 N. 962 Rd.
Lawrence, KS 66046
785-842-3127
jniebaum@sunflower.com
website: http://vfkansas.blogspot.com

 

MONTANA
Jessica Rago
Billings, MT
406-256-8129
ragoj@hotmail.com

 

NEBRASKA
Omaha-Council Bluffs Chapter
Amy Frahm-Mildward
1061 State Street
Blair, NE 68008
402-426-8434
angusdr10@msn.com

 

NEVADA
Cynthia Bagley
710 Hot Springs Rd. #207
Carson City, NV 89706
775-220-7450
cebagley@bagleyfamily.com

Karen Ballard
Buerger's disease only
Las Vegas, NV 89030
702-643-1319
kb89030@yahoo.com

Lloyd Krivanek
5133 Cutty Way
Las Vegas, NV 89130
702-645-8942
lkrivanek@cox.net

Northern Nevada Chapter
Layloni Lange
Dayton, NV 89403
775-230-0260
loni_lange@yahoo.com

 

NEW HAMPSHIRE
Concord Chapter
Catherine Keane
Concord, NH 03303
603-224-0937
cassiekeane@comcast.net

Nick Salafia
Concord, NH 03303
Teen contact only
603-224-0937
603-345-1881
nicksalafia@comcast.net

David Neary
Plaistow, NH 03865
603-382-6950

Howard Archibald
6 Coitview St.
Newport, NH 03773
603-863-9332
papaa@comcast.net

 

NEW MEXICO
Central New Mexico Chapter
website: http://www.nmvasculitis.org
Joseph Carpenter
Albuquerque, NM
505-255-1366
joseph@nmvasculitis.org

Karla Kollasch
Albuquerque, NM 87120
505-797-4811
karla@nmvasculitis.org

NEW JERSEY
NY/NJ/CT Tri-State Chapter
Gail Schultz
36 Markham Rd.
Edison, NJ 08817
732-287-5248
gail1370@aol.com

Jill Kassirer
973-912-8875
plkjsk@aol.com

Robert Kovacs
Barnegat, NJ 08005
609-698-8488
bobkovacsnj@gmail.com

NEW YORK
Western New York Chapter
Janice Cifelli
LeRoy, NY 14482
585-813-1808
wnyvasculitis@gmail.com

Gregg Calder
Merrick, NY 11566
516-379-2265
gcal55@aol.com

Long Island Chapter
Rachel LeGris
631-335-0979
legriseve@yahoo.com
website: www.wix.com/longislandchapter/vasculitis

Middletown, NY Chapter
Lewis Newmark
845-342-2861
snewmark@hvc.rr.com

Mary Hearst
New York, NY 10021
917-439-8636
maryhearst@bloomingdales.com

Kelly Sinnott
Utica, NY 13502
315-797-8009
kellys0411@aol.com

NY/NJ/CT Tri-State Chapter
Gail Schultz
36 Markham Rd.
Edison, NJ 08817
732-287-5248
gail1370@aol.com

Upstate NY/VT Chapter
Debbie Emrick
Queensbury, NY
518-798-7565
emrickdebbie@aol.com

 

NORTH CAROLINA
Molly Mason
Asheville, NC
828-670-6982
mollymason@bellsouth.net

NC/Raleigh Chapter
Elaine Holmes
824 Providence Glen Drive
Chapel Hill, NC 27514
919-929-1246
eholmes18@nc.rr.com
Website: http://ncvasculitissupportgroup.memberlodge.org

Joyce Parrott
11013 Eaglerock Dr.
Raleigh, NC 27613
919-845-6405
jparrot1@nc.rr.com

 

NORTH DAKOTA
Fargo, ND Chapter
Umbreen Hasan
Fargo, ND 58103
701-234-2828
umbreen.hasan@meritcare.com

Shannon Meier
1398 9th Street East
Dickinson, ND 58601
701-225-9272
scourt_shan@yahoo.com

 

OHIO
Central Ohio Chapter
Donna Bricker
3039 Glenshaw Ave.
Columbus, OH 43231
614-337-0688
covasculitisfoundation@yahoo.com

Cleveland-Akron Chapter
Lynn Corwin
Northfield Center, OH 44067
330-467-3031
annabelle3@hotmail.com
Website: org...

Randy Wooldridge
Akron, OH
WG patients only
330-633-2989
rw333@neo.rr.com

Toledo Chapter
Diane Docis
Toledo, OH 43560
419-882-2267
vasculitis.toledo@yahoo.com

Keith Furlong
5717 Delisle-Fourmans Rd.
Arcanum, OH 45304
937-548-6556
furpatt@voyager.net

Don Gebhart
Hilliard, OH 43026
614-777-6296

Don Medaglia
29410 Lansing Drive
Westlake, OH 44145
440-835-5338

Jennifer Nichols
720 Fairhaven Drive
Hamilton, OH 45013
513-642-6010
jengro31@yahoo.com

Kim Young
3908 Ficus court
Hamilton, OH 45013
513-738-4183

Greater Cincinnati Ohio Chapter
Stephanie Tyler
Mason, OH 45040
513-336-6441
steffirtyler@yahoo.com

OKLAHOMA
Doris Hassler
PO Box 5954
Enid, OK 73702
580-233-2539
stevendoris1@yahoo.com

Oklahoma City, OK Chapter
Tricia O'Hara
405-317-3660
panneohara@sbcglobal.net

Oklahoma City, OK Chapter
Bill McVay
405-277-3597
billmcvay50@yahoo.com

Angela York
Moore, OK 73160
405-793-0949
ayork10@cox.net

 

OREGON
Gail Howard
McMinnville, OR
503-883-1236
gjhoward1@gmail.com

Carolyn McMillin
PO Box 812
Lebanon, OR 97355
541-258-7034

 

PENNSYLVANIA
Eastern PA/Western NJ Chapter
Jack & Ruth Falkenstein
318 Riverview Ave.
Drexel, PA 19026
484-461-6156
thefalkensteins@rcn.com

Terri Dennis
Gibbon Glade, PA
724-329-8335
teri@qcol.net

Sharon and Stephanie Sherman
431 N. New Street
West Chester, PA 19380
610-431-9612
scshermanpa431@juno.com

Robert and Marlene Brosious
Northumberland, PA 17857
570-473-3871

Candace Ross
Greensburg, PA 15601
Cannella67@yahoo.com

Pittsburgh Chapter
Kathy McKinnon
Pittsburgh, PA
412-648-9782
kmm72@pitt.edu

Shannon Koprivnak
Kittanning, PA 16201
skoprivnak@yahoo.com

 

 

PUERTO RICO
Gilda Nadal-Vasquez
PO Box 360964
San Juan, PR 00936
787-789-2169
bonafe42@hotmail.com

 

RHODE ISLAND
Sandra Scotti
East Greenwich, RI 02818
401-398-0429

Rhode Island Chapter
Kelly Barrette
Woonsocket, RI
401-439-8876
kellyb947@cox.net

Gabrielle Sclafani
Barrington, RI 02806
Teen-only contact
littlesclaf101@hotmail.com

 

SOUTH CAROLINA
SC/Charlotte, NC Chapter
Judy Brown
Rock Hill, SC 29732
803-324-1331
judy1333@aol.com

Charleston Chapter
Julia Harvin
18 N. Church
Summerton, SC 29148
803-485-4645
jrh29148@yahoo.com

Johnny Hinson
1929 Fairway Drive
Lancaster, SC 29721
803-286-9046
jehinson@comporium.net

Vicky Seigler
13 Westside Dr.
Charleston, SC 29412
843-762-2158
vseigler@charlestoncounty.org

 

SOUTH DAKOTA
Judy Noll
211 10th Ave NE
Watertown, SD 57201
605-882-0605

East River Chapter
Joann Bollwerk-Gisi
13098 385th Ave
Aberdeen, SD 57401
605-225-5868

 

TENNESSEE
East TN Chapter
Arlen Allen
1024 Walnut Lane
Seivierville, TN 37876
865-428-0772
papawa@peoplepc.com

 

TEXAS
Austin Chapter
Chris Cosner
512-280-1274
ccosner92@gmail.com

Bill Schnier
Austin, TX 78738 & Rio Grande Valley, TX
512-789-3017
wrschnier@hotmail.com

Dallas Chapter
Nicole Guerin
972-323-5190
nicolecguerin@yahoo.com

Dallas Chapter
Jean Larson
214-381-0716
larson7629@sbcglobal.net

Corpus Christi, TX Chapter
Veronica Valenzuela
940-231-3216
veronicavalenzuela06@yahoo.com

San Antonio Chapter
Christina Ramirez & Heather Phinney
210-288-7532
chris0126@mac.com

John Colglazier
San Antonio, TX 78209
210-821-5644
jac@colglazier.com

Kay Evans
Reagan, TX 76680
kevans@airtools.com

John Harrington
4794 Scales Lane
Orange,TX 77630
409-735-3800
jharrington003@gt.rr.com

Sheila Kertesz
1812 Rally Lane
Harker Heights, TX 76548
254-466-2717

Diane Williams
9100 Lark
Waco, TX 76712
254-399-9684
baylordi@grandecom.net

 

UTAH
Mark Smith
1973 Cobblestone Road
Springville, UT 84663
801-489-4733
smithosity@yahoo.com

Salt Lake Valley Chapter
Susan Bothwell
801-432-8479
susanbythemountains@yahoo.com

Salt Lake Valley Chapter
Julia Ament
3635 Apollo Dr.
Salt Lake City, UT 84124
801-272-6234
aments@yahoo.com

 

VERMONT
Howard Archibald
6 Coitview St.
Newport, NH 03773
603-863-9332
papaa@comcast.net

Upstate NY/VT Chapter
Debbie Emrick
Queensbury, NY
518-798-7565
emrickdebbie@aol.com

 

VIRGINIA
Roanoke Chapter
Sue Styron
Roanoke, VA 24014
540-343-4943
shepherd39@verizon.net

Hampton Roads Chapter
Greg and Lynn Lesko
Newport News, VA 23606
928-380-0319
HRVFChapter@gmail.com

 

WASHINGTON
Seattle-Tacoma Chapter
Pamela Cornell
momozart@juno.com

Vicki Wertman
6545 Dash Point Blvd. NE
Tacoma, WA 98422
253-740-8278
vickiwertman@yahoo.com
website: http://www.pulibros.com/vasculitisnw.html

 

WEST VIRGINIA
Vaughn Sizemore
Hurricane, WV 25526
304-389-7732
vsizemore@aol.com

 

WISCONSIN
North Central Chapter
Deb Claxton
715-495-0782
debclaxton@gmail.com

Kelly Deering
Merrill, WI 54452
deering1405@gmail.com

Briant Redmond
Dousman, WI 53118
bd6reds@gmail.com