100 Mile Garage Sale

05/06/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Vickey Roeder

Phone:  507-281-3692

Rochester, MN

Please contact Vickey for more information.

2nd Annual Smile for Courtney Pageant - Alabama

05/05/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Heather Free

Phone:  256-689-5554

heather9_27@yahoo.com

This pageant is held in honor of Courtney Abernathy who was diagnosed with Granulomatosis with polyangiitis (GPA) Wegener's in February 2011.  More info TBA at a later date.

www.smileforcourtney.com

Face Book page:  The "Smile for Courtney" Foundation

 

2nd Annual Trivia Night for Vasculitis Awareness - St. Charles, MO

05/19/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Sharon Schoppman

Phone:  314-276-6719

sharonschoppman@yahoo.com

We are proudly hosting our 2nd Annual Trivia Night fundraiser to benefit the Vasculitis Foundation to raise money for education and research.  Get together with a table of friends and family and enjoy a fun night out for a great cause.  There will be 10 rounds of trivia, games throughout the evening, raffle baskets and a silent auction.

6:15 pm - 11 pm

St. Charles Borromeo Dyer Memorial Center, 534

N. 5th Street

 St. Charles, MO

Doors open at 6:15 pm; trivia starts at 7:00 pm

Beer only will be provided, please bring any other drinks (including soda, please no hard liquor).

Don't forget your favorite snacks!

Table of 8 is only $150 in advance, and $160 at the door.

(Pay before March 15 and it is only $120/table!)

 

3rd Annual Jamie Alfieri McLean Fundraiser

10/29/2011 - 00:00
Etc/GMT
What's Happening: 

The 3rd annual Jamie Alfieri McLean fundraiser will be taking place on October 29, at the Halifax Country Club in Halifax, Massachusetts from 6-10 pm. In these unprecedented economic times, local companies have generously donated services and goods that will be auctioned off or raffled to attendees.  During the evening we will also show our gratitude for their support by giving away door prizes and holding a 50/50 raffle.  The event includes a sit down dinner and we also have a DJ during the evening.  The ticket price per person is $40.  Dr. John L. Niles, M.D., who is a preeminent nephrologist at Massachusetts General Hospital, will be speaking to attendees about the disease.  This year we have asked a few patients to speak to describe their symptoms, how long it took to be diagnosed and medications they are currently taking.  This event is to raise awareness and funds to combat an uncommon yet devastating disease.

 If you are interested in attending this fundraiser, please notify Jamie Alfieri McLean no later than October 8.  Please feel free to email me at jpmclean0609@comcast.net.  Please note that in order to attend, the ticket price must be collected prior to the event so that we can give the Country Club a final head count.

7th Annual Kansas City 5K Run/Walk/Bike Event

05/14/2011 - 00:00
Etc/GMT
What's Happening: 

Contact:  Bob Schoonover

Phone:  913-894-6772

rguard513hs-vfnews@yahoo.com

OR

Contact:  Jerry Niebaum

jniebaum@sunflower.com

Shawnee Mission Park, KS

79th & Renner Rd.

Shawnee, KS  66219

Shelter #8

Registration:  9:00 am - 9:30 am

Walk:  10:00 am

$15.00 per participant, which includes a free t-shirt and food.  Please bring food to share for the pot luck meal that follows the event.

We want you to bring a white elephant item.  A white elephant is something you have that you don't like, or need, or is gathering dust, or is hidden in the closet; do you get the idea?  We are going to exchange these "prizes" with each other.  It should be fun!

Please help us plan by pre-registering for the walk! Click here to register.  

A Harley Davidson Ride In Memory of Jay O'Connor

07/07/2012 - 00:00
Etc/GMT
What's Happening: 

9:00 am - start time

The Harley Ride will begin at Heritage Harley located at:

2595 Ogden Ave.

Lisle, IL  60532

The riders will ride to Poopy's Pub, 1030 Viaduct Rd., Savanna, IL  61074.

The ride is 131 miles one way and will take about 2 hours.

A BBQ will be held after the ride at the residence of Kathe Woeltje, Jay's sister. Contact Kerry for the address.  This will be hosted by the Kerry Shea family and Jay's family.

Food and Drink will be provided.

For more information, please contact:

Kerry Shea at  310-367-1575 kerry_sh@yahoo.com

OR

Kathe Woeltje at 815-496-2640

 

Please read Jay's story below:

Jay’s Story
 
Jay O’Connor was my boyfriend and the love of my life. He passed away July 11, 2011. He was diagnosed with PAN in 2004. He faced many challenges after that including Bypass Surgery, Chemo, Brain Surgery, Seizures, Chronic Pancreatitis, many days filled with pain and fatigue. Jay faced these challenges with grace, courage and most important to him a sense of humor.
 
Jay was an avid motorcycle rider. He loved motorcycles and was able to buy his dream Harley right before he was diagnosed with PAN. His Harley was his pride and joy. If Jay was feeling good and the weather was nice you bet he would be out riding his Harley. Jay took me on my first Harley ride in 2008. I was hooked right away. I moved from California to Chicago in January of 2010 to be with Jay after two years of a long distance relationship.
 
Jay taught me so much about life and what was really important. He told me every day, Kerry we get up and do the best we can with what we have and when you start feeling overwhelmed take a deep breath and say to yourself where are my feet at this moment? I carry with me every day the wisdom Jay passed on to me.
 
This Fund-Raiser is in memory of Jay and also to raise awareness and money for PAN. A very rare disease that I feel needs more attention. No donation is too small.
 
Thank you for taking time to read Jay’s story. His friend Richie told me after Jay passed that Jay was the kind of guy you never forget. I wish everyone had a chance to know Jay.

An Evening With Chris Trapper to Benefit Invisible Illnesses

04/14/2012 - 00:00
Etc/GMT
What's Happening: 

6 pm - 10 pm

Lou and Harry's Sports Bar

16800 Chandler Road

East Lansing, MI  48823

Tickets:  $30/person

Benefit Concert by Grammy nominated singer/songwriter Chris Trapper.  Please see attached flyer for more details.

Contact Allie Dama at allisondama@gmail.com or 517-256-9370 for more information.

August 14 - 23 FUNDRAISER - 2nd Annual Mountain Top Baseball Tournament

08/14/2009 - 00:20
08/23/2009 - 00:20
Etc/GMT
What's Happening: 

The 2nd Annual Mountain Top Baseball Tournament will be held August 14 - 23.  Ages 8 - 11 will be participating.  The cost is $100 per team to enter.

The location is:  Mountain Top Baseball Complex, Alberdeen Road, Mountain Top, PA.

For additional information, please contact:  Terry & Jeff Tokach at tokach3@verizon.net  or    570-466-5613   .  To make a donation, please use the "Donate" button above. 

 

August 8 FUNDRAISER - "On the Move for a Cure" Vasculitis Awareness Walk

08/08/2009 - 12:55
Etc/GMT
What's Happening: 

Join us for a Walk, Lunch, Fun Games, and Raffle Prizes !

WHEN:  August 8, 2009  10:30 AM - 2:00 PM

WHERE:  Katherine Legge Memorial Park, 5901 South County Line Road, Hinsdale, IL

WHO:  Vasculitis Foundation Members, Friends and Families

Take advantage of discounted early admission rates until August 1:

$20 - Adult admission with T-shirt, includes lunch

$10 - Adult admission, includes lunch

$5 - Ages 12 and under, includes lunch

Household family maximum price is $30 (not incluing T-shirts).  Patients are free.

Please use the "Donate" button above to register for the event and/or donate.  Please also email Julie Dahl at sailthebluesea@mac.com with the amount donated, number of tickets you wish to purchase and T-shirt sizes.  For more information, visit:  http://www.chicagovasculitis.com/Events.html.

If you are unable to attend the event, you may buy raffle tickets for a "Night on the Town".  Each raffle ticket costs $5.  To support this event by purchasing raffle tickets, please use the "Donate" button above.   

Banfield Pasta Night - New Jersey

10/13/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Dennis & Carmela Banfield

dbanfield13@comcast.net

5 pm

Perry's Lake Clubhouse

4 Princeton Drive

Manahawkin, New Jersey  08050