Bill's Story

 

 

 

 

 

 

 

 

 

For 30 years, I traveled for a living. Most of the travel was by airplane, with many of the trips to far away international destinations. Spending so much time in airplanes, where airborne bacteria are common and spread easily, I thought regular congestion and monthly sinus infections were the norm.

 

Brandon's Story

Graduate student Brandon Hudgins has accomplished many feats as a collegiate student-athlete, but perhaps one of his greatest was surviving and overcoming a deadly disease.

Crystal's Story

I have been a registered nurse for more than 30 years, someone who was very proactive about her health. In September 2008, while receiving medical care for something else, I experienced recurring, unexplained complications. Five months later, I thought I was finally getting better. Then I had two episodes of extreme exhaustion, severe headache, shaking, hot and cold chills, muscle spasms and aching, rapid heart rate, fever, joint pain, and was lightheaded. One physician thought it might be drug side effects, while a second doctor thought it was a severe flu. A third physician suggested seeing a therapist, as perhaps it was all in my head!

Deb's Story

When Deb Claxton was diagnosed with Microscopic polyangiitis (MPA) in 2005, it was the last straw in a series of sad and tragic events that marked her life. Her first husband ran off with a married woman and she learned about it when she came home from work and found half her furniture and possessions missing. Her second husband was verbally abusive. She lost a son that died at birth, and the biggest tragedy in her life was the unexpected death of her 16 year old daughter.

Diane's Story

 
I could tell you about ear surgery, sinus infections, daily fevers, the Rituximab Therapy for the Induction of Remission and Tolerance in ANCA-associated Vasculitis (RAVE) study, and cyclophosphamide. I could tell you about fatigue, weight gain, hair and bone loss, body aches and drastic mood swings. I could tell you about my Mayo Clinic (Mayo) diagnosis of a rare autoimmune vasculitis, Wegener’s Granulomatosis (WG) and how each flare-up resulted in 4 to 5 trips to Mayo for weekly infusions. I could tell you about B cells run amok and the influence of prednisone on my mood—from euphoria, to thinking I could pick a fight with Mother Teresa. I could tell you about denial of insurance coverage for rituximab and about my struggle to keep this chronic illness from recurring. I could tell you about the flare-up that threatened to take down my kidneys and hearing, and about financial drain and budget reprioritizing.

Judy's Story

I was fifty six when I started feeling ill, with what I was to learn was Wegener's Granulomatosis Vasculitis. I had always been fit and active, playing badminton the odd game of tennis, gardening and had done the Race for Life for many years. I don't smoke or  drink and I am not  over weight. I had  pain in my hands,  my legs and arms, much worse at bedtime when I could not move.

Kathryn's Story

Is it true, like Robert Frost said, that “Nothing gold can stay”? Must “Eden sink to grief”- can happiness ever last? I thought, at 20 years young, that I had conquered whatever it is that controls our lives- fate, destiny, the stars... 

Kelli's Story

Flash back to my sophomore year at Venice High School—I was a 15-year-old majorette in the marching band and a French horn player in the concert band. Also, I was a dancer and took guitar and piano lessons. I was having the time of my life until December 2007.

Kimberly's Story

The ear doctor came to the conclusion that I have Wegener’s Granulomatosis.  He was 100% sure of it, because they had 1 other patient in the past with it and very similar symptoms.  The treatment was daily oral Cytoxan and cortisone.

Marcela Serrano's Story

Marcela Serrano was a happily married 34 year old mother of two when she began feeling arthritic pains and eye irritation in 1997. Her doctors in Columbia, South America began treating her for arthritis; however, Marcela’s condition did not improve. As her condition worsened, she was diagnosed with Wegener’s Granulomatosis two years later.