Philadelphia – July 12-14, 2013

The Vasculitis Foundation invites you to join us in Philadelphia, The City of Brotherly Love, for our 2013 International Vasculitis Symposium. The conference will feature educational opportunities including general sessions featuring our world-renowned vasculitis experts, breakout sessions for specific disease groups and special issues, networking activities and tourist excursions for everyone.

The Vasculitis Foundation believes attending a symposium is one of the most positive and uplifting experiences a patient and their family can have. The symposium not only helps you learn what you need to know, it also provides the opportunity for you to meet others who are familiar with vasculitis and actually do understand what you’re going through.

SYMPOSIUM HEADQUARTERS:  The famous Loews Philadelphia Hotel (1200 Market Street, Philadelphia, PA 19107) will serve as symposium headquarters and is within walking distance of many of the city’s most famous historical sites, including the Liberty Bell, Independence Hall, the U.S. Constitution and others related to the founding of the United States. In addition, the hotel is within walking distance of numerous restaurants and shopping opportunities!

The VF has a special room rate of $159/night plus taxes. Click here to reserve a room or call 888.575.6397. Please reference the Vasculitis Foundation Patient Symposium. PLEASE NOTE: There are rooms available for Friday and Saturday night at the special VF room rate. If you have any problems when reserving please email the VF office.

Or call the VF office to register by phone.  816.436.8211

 Click here to download the symposium schedule.

 Click here to download a list of the symposium speakers.

 Please join us for an informative and exciting weekend!


PRELIMINARY SCHEDULE

Friday, July 12, 2013

11:00 a.m. Registration Desk opens (Please note, pre-registration is required. Deadline is June 30, 2013.)

1:00 p.m. – 1:30 p.m.  Welcome and Introductions:
Grace Eisen, President, VF Board of Directors
Peter A. Merkel, MD, MPH, Chair, VF Symposium Speakers’ Committee

1:45 p.m. – 3:45 p.m.  Individual Disease Sessions
These sessions will focus on symptoms, treatments, side effects and concerns for your specific disease. Join other attendees for an afternoon of learning and networking.

  • Behcet’s:  Yusuf Zacizi, MD, NYU Langone Center
  • Eosinophilic granulomatosis with polyangiitis (Churg Strauss syndrome):  Christian Pagnoux, MD, Mount Sinai Hospital-Toronto and Rodrigo Cartin-Ceba, MD, Mayo Clinic
  • Giant cell arteritis/Takayasu’s arteritis/Polymyalgia rheumatica:  Robert Spiera, MD, Hospital for Special Surgery and Rebecca Manno, MD, Johns Hopkins Vasculitis Center
  • Granulomatosis with polyangiitis/Microscopic polyangiitis:  Duvuru Geetha, MD, Johns Hopkins Vasculitis Center, Robert Lebovics, MD, Head & Neck Surgery, NYC, and Peter Merkel, MD, University of Pennsylvania
  • Polyarteritis nodosa/Central nervous system vasculitis/Cryoglobulinemia:  Eric Hoy, PhD., University of Texas Southwestern Medical Center and Paul Monach, MD, Boston University Vasculitis Center
  • Pediatrics/Young Adults:  Melissa Lerman, MD, The Children’s Hospital, Philadelphia and Andrew Zeft, MD, Cleveland Clinic Center for Vasculitis Care and Research

*Additional disease sessions will be added as patients register

1:45 p.m. – 3:45 p.m.  Pediatric/Young Adults Session
The Vasculitis Foundation is proud to announce expanded offerings for our younger patients and their parents/guardians. In addition to Friday’s session, the group will also meet on Saturday. Friday’s session is an overview of vasculitis in children and we will review the disease process, potential complications, cutting edge therapies and outcomes for our pediatric patients. In addition, attendees will discuss coping mechanisms, educational concerns and helping our younger patients live successfully with vasculitis.

3:45 p.m. – 4:30 p.m.  Strategy sessions for the individual disease groups: Connecting the vasculitis community with the Vasculitis Foundation

7:30 p.m. – 9:30 p.m.  Dessert Reception
Welcome and Introductions: Steve Madincea, Chair, VF Symposium Committee

Keynote Address: Bridge Over Troubled Waters: A Survivors Guide: HOPE — Humor, Optimism, Partnership and Education”:  Celeste Castillo Lee, Program Manager for Patient and Family Centered Care, Adult Services, University of Michigan Health System

Saturday, July 13, 2013

7:00 a.m. – 8:00 a.m.  Breakfast

8:00 a.m. – 8:15 a.m.  Welcome and Introductions

Latest Advances in Vasculitis Research

8:15 a.m. – 8:45 a.m.  Autoimmunity and Vasculitis: Paul Monach, MD, PhD

8:45 a.m. – 9:15 a.m.  The Role of Genetics in Vasculitis: Sharon Chung, MD, MAS

9:15 a.m. – 9:45 a.m.  Morning Break

Vasculitis Fall-out

9:45 a.m. – 10:15 a.m.  Chronic Medical Effects: Phil Seo, MD

10:15 a.m. – 10:45 a.m.  Vascular Issues for Patients with Vasculitis (Heart Healthy): Emile Mohler, III, MD

11:00 a.m. – 12:00 noon:  Breakout Session #1

  • Ear/Nose/Throat Involvement: Oren Friedman, MD and Robert Lebovics, MD, FACS
  • Health Promotion: Managing Remission: Gary S. Hoffman, MD, and Sharon Chung, MD
  • Kidney Involvement in Vasculitis: Jeffrey Burns, MD and Duvuru Geetha, MD
  • Medications: The good, the bad, the ugly: Tanaz Kermani, MD and Robert Spiera
  • Nutrition: Eating well to combat vasculitis

12:00 noon – 1:30 p.m.  Lunch with the Doctors

1:30 p.m. – 2:30 p.m.  Breakout Session #2

  • Dermatology/Skin Involvement in Vasculitis: Misha Rosenbach, MD
  • Eyes and Vasculitis: Sunir J. Garg, MD, FACS
  • Fatigue and Vasculitis: Peter Grayson, MD, MSc and Yusuf Yazici, MD
  • Lung Involvement in Vasculitis: Rodrigo Cartin-Ceba, MD and Christian Pagnoux, MD
  • Pain Management in Vasculitis: John Farrar, MD, PhD
  • Tests for Vasculitis Patients and What you Need to Understand: Tanaz Kermani, MD

2:30 p.m. – 2:45 p.m.  Afternoon Break

2:45 p.m. – 3:45 p.m.  Breakout Session #3

  • Caregiving for Yourself with Caring for Others
  • Fertility and Family Planning Issues
  • Gastrointestinal Involvement in Vasculitis
  • How Can I Do That? Remaining engaged through adaptions, time management and energy conservation techniques: Cynthia Carr, DrOT, MS, OTR/L
  • Not Just Another Pill. Using complementary and alternative medicine to manage the symptoms of vasculitis and the side effects of treatment. Julie McGregor, MD

6:30 p.m. – 9:00 p.m.  Celebration and Recognition Banquet

Sunday, July 14, 2013

7:00 a.m. – 8:00 a.m.  Breakfast and Vasculitis Foundation Annual Membership Meeting and Election of Officers

8:00 a.m. – 8:45 a.m.  Breakout Session #4

  • Advocacy Issues for the Vasculitis Community
  • Beyond Google – Using the Internet to Research Medical Information
  • Creating Partnerships with Patient Advocacy Groups
  • Looking Good with Vasculitis
  • Not Just Another Pill. Using complementary and alternative medicine to manage the symptoms of vasculitis and the side effects of treatment. Julie McGregor, MD

Latest Advances in Vasculitis Research – What it means for the vasculitis community

9:00 a.m. – 9:30 a.m.  Biomarkers and new translational research projects in vasculitis: Peter Grayson, MD, MSc 

9:30 a.m. – 10:00 a.m.  Research results: Recap of the past two years: What have we learned? What does it mean for patients?  Carol A. Langford, MD, MHS

10:00 a.m. – 10:30 a.m.  Morning Break

10:30 a.m. – 11:00 a.m.  Current clinical research trials in vasculitis: Peter A. Merkel, MD, MPH

11:00 a.m. – 11:30 a.m.  Questions and Answers with Drs. Grayson, Langford and Merkel

11:30 a.m. – 12:00 noon:  Vasculitis Research:  Moving Forward Together: Gary S. Hoffman, MD, MS

12:00 noon – 12:15 p.m.  Wrap-up and Goodbye


REGISTRATION:
Meals, educational materials, handouts and admittance to educational sessions and exhibit area, refreshment breaks and VF Symposium 2013 t-shirt!

Registration fee: $225 for VF members; $260 for non-VF members. (If you are not sure if your dues are paid in full, please contact the VF office.)

Registration deadline:  Sunday, June 30, 2013

 

Or call the VF office to register by phone. 816.436.8211

Pediatric Patients:   Only pediatric vasculitis patients are permitted to attend symposium sessions and a parent or legal guardian must accompany any patient 15 years of age or younger to the sessions.

To view sessions from previous symposia, please visit the VF’s

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Participation in Clinical Trials is one way you can help advance research into finding better treatments and perhaps even a cure for vasculitis!
Learn how you can participate in clinical trials - National Institutes of Health

Vasculitis Foundation Fellowship Program

The Vasculitis Foundation Fellowship provides the opportunity for one- or two- year tracks designed to support the training of physician scientists who wish to gain clinical expertise in vasculitis and who may also wish to pursue an investigational career in this field. The fellowship will be conducted through Vasculitis Centers where there has been a track record of training individuals in vasculitis.

"The Vasculitis Foundation is committed to creating greater awareness and interest in vasculitis," said Joyce Kullman, executive director of the VF. "We hope that our new Vasculitis Foundation Fellowship will encourage medical professionals to pursue careers in patient care and research linked to vasculitis."

The Vasculitis Foundation Fellowship is possible thanks to the generous support of Genentech, Inc., and Biogen Idec and many other generous individual and corporate donors. For more information on how you may donate to the Vasculitis Foundation Fellowship, visit the donate page.

Medical Institutions

The Vasculitis Foundation encourages vasculitis patients to seek expert medical care for diagnosis and treatment of the disease. The VF works closely with vasculitis experts and centers around the world to ensure patients have access to the most up-to-date medical care.

The Vasculitis Clinical Research Consortium (VCRC) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research in different forms of vasculitis and improving the care of patients with vasculitis.