Patient Stories

Following are stories from people affected by vasculitis. Although the stories are divided by disease, patient experiences are strikingly similar. Many stories speak of the difficulty of diagnosis, the emotional impact of the disease, managing flares, and medications that are common to all the vasculitides. In addition, some forms of vasculitis overlap and patients are diagnosed first with one form of vasculitis, then another. For these reasons, every story here may resonate with patients with any form of vasculitis.

Thanks to the authors of these stories for sharing their experiences. Since these diseases are extremely rare it is reassuring and inspiring to read about how others are living with vasculitis.

If you are interested in sharing your story please click here.

• General Vasculitis Patient Stories
• Behcet's Patient Stories
• Churg Strauss Patient Stories
• Central Nervous System Patient Stories
• Cryoglobulinemia Patient Stories
• Giant Cell Arteritis Patient Stories
• Microscopic Polyangiitis Patient Stories
• Polyarteritis Nodosa Patient Stories
• Takayasu's Patient Stories
• Wegener's Granulomatosis Patient Stories