Vasculitis Foundation New England Health Care Provider Program - Registration now open

Vasculitis Foundation New England Patient/Family Conference and Concert - Registration now open!

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VF New England Health Care Provider Program March 19, 2011

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03/19/2011 - 00:00
03/19/2011 - 11:30
Etc/GMT
What's Happening: 
Conference Location:
Doubletree Guest Suites Hotel
Boston / Waltham
550 Winter Street
Waltham, Massachusetts 02451
781.890.6767  
 
Program:
This half-day program will address diagnosis and management of vasculitis, including recent important changes in the state of the art. Each presentation will provide attendees with a clear understanding of the current standard of care.

Format:  Lectures, panels, question and answer session.

Target Audience:  Rheumatologists, internists, hospitalists, nephrologists, pulmonologists, nurse practitioners, and other health care professionals interested in vasculitis.  

Educational Objectives: 
  • Review diagnosis and management of both large and small-vessel vasculitis.
  • Review new and promising therapies for vasculitis.
Schedule 
 
7:00 am - 7:45 am       Registration and Continental Breakfast
                                               
7:45 am - 8:00 am       Welcome, Overview and Introductions
                                     Gary S. Hoffman, MD, MS
                                     Harold C. Schott Chair Professor of Medicine
                                     Department of Rheumatic and Immunologic
                                     Diseases
                                     Center for Vasculitis Care and Research 
                                     Cleveland Clinic/Lerner College of Medicine
                                               
8:00 am - 8:35 am       Vasculitis Mimics; Opportunities for
                                     Errors
                                     Peter A. Merkel, MD, MPH 
                                     Professor of Medicine, Section of
                                     Rheumatology
                                     Director, Vasculitis Center, Boston University
                                     School of Medicine, Boston, Massachusetts  
 
8:35 am - 9:10 am        New Directions in Treatment; Now and
                                      for the Future
                                      John H. Stone, MD, MPH
                                      Clinical Director of Rheumatology
                                      Massachusetts General Hospital
                                      Boston, Massachusetts
 
9:10 am - 9:30 am        Morning Break
 
9:30 am - 10:05 am      Avoiding and Treating Kidney Failure
                                      John L. Niles, MD
                                      Nephrology and Internal Medicine
                                      Massachusetts General Hospital
                                      Boston, Massachusetts
 
10:05 am - 10:40 am    Giant Cell Arteritis and Takayasu’s
                                      Arteritis - the same or different?     
                                      Gary S. Hoffman, MD, MS
                                      Harold C. Schott Chair Professor of
                                      Medicine, Department of Rheumatic and
                                      Immunologic Diseases

                                      Center for Vasculitis Care and Research
                                      Cleveland Clinic/Lerner College of Medicine
 

10:40 am - 11:15 am    Question and Answer Panel       

                                      All Faculty

Registration Fees

Registration Deadline: Saturday, March 12, 2011

Physicians:  $100    $125 (Late and onsite)                               
Allied Health Care Professionals:  $75    $85 (Late and onsite)   
*Students/Residents/Fellows:  No Charge       
*Residents/Fellows registration must include written proof of residency (a letter from Program Director) to receive reduced fee. Residents/Fellows please fax letter to the Vasculitis Foundation: 816.436.8211.
 

Celebrate Vasculitis Awareness Month - May 1-31, 2011

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Ilya Peckerman Fund Benefits Vasculitis Foundation

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Leading-Edge Research and Strategies for Living with Vasculitis Symposium - Register Today!

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05/14/2011 - 00:00
05/14/2011 - 18:00
Etc/GMT
What's Happening: 

REGISTRATION NOW OPEN!

The Vasculitis Foundation and the North Carolina/Raleigh VF Chapter, will host a one-day regional Vasculitis Patient and Family Symposium on Saturday, May 14, 2011 in Chapel Hill, North Carolina.

The symposium is being held prior to the start of the 2011 International Vasculitis and ANCA Workshop for vasculitis physicians and scientists, which is being hosted by the UNC Kidney Center. This allows the regional patient symposium to include international speakers in the program.

This meeting is being organized as a way to offer educational updates to patients and families between the years of the international Vasculitis Foundation symposia.

Click here to register now!

Location:  UNC Friday Center for Continuing Education

                 100 Friday Center Drive
                Chapel Hill, NC 27599
 
Early Registration Fee (through May 6, 2011): $70/person (includes conference materials, breakfast, breaks, lunch, and reception)

Late Registration Fee (after May 6th and onsite): $90 (includes conference materials, breakfast, lunch, breaks and reception) 

Pediatric Patients:  A parent or legal guardian must accompany any patient 15 years or younger to the sessions. No children (except pediatric patients) will be allowed to attend the sessions. Children may attend the meals and reception but must be registered and accompanied by parent or guardian. 

To download the schedule and complete list of speakers, please click on the ATTACHMENT below.

Register by phone: 800.277.9474.

Schedule of Events

8:00 am - 9:00 am    Registration and Breakfast
 
9:00 am - 9:15 am    Welcome and Overview                     
                                  Ronald J. Falk, MD, UNC Kidney Center
                                  Elaine Holmes, Leader, VF NC/Raleigh Group  
 
9:15 am - 10:30 am  
Directions in Basic and Clinical Research on Vasculitis
 
In what directions is research going?
What are the questions we are trying to answer?
Ronald J. Falk, MD, UNC Kidney Center
Connie Weyand, MD, PhD, Rheumatology, Stanford University
   
Where will vasculitis research and treatment be in five years?
Cees Kallenberg, MD, PhD, University Medical Center,
   The Netherlands
What resources will it take to get there?
Niels Rasmussen, MD, Rigshopitalet, Copenhagen, Denmark
 
How will this translate to patient care?
Gary S. Hoffman, MD, MS, Center for Vasculitis Care and Research
 
Question and Answer Panel:  All Faculty
 
10:30 am - 11:00 am  Morning Break
 
11:00 am - 12:00 pm  Breakout Session #1 (choose one)
 
Ear/Nose/Throat
Niels Rasmussen, MD, Rigshospitalet, Denmark
Brent Senior, MD, UNC Dept. of Otolaryngology/Head & Neck
 
Nutrition
Evangeline Lausier, Duke Integrative Medicine
 
Standard of Care for Small Vessel Vasculitis
Patrick H. Nachman, MD, UNC Kidney Center
Cees Kallenberg, MD, PhD, University Medical Center, The    
  Netherlands
 
Standard of Care for Large Vessel Vasculitis
Gary S. Hoffman, MD, MS, Center for Vasculitis Care and Research
Connie Weyand, MD, PhD, Rheumatology, Stanford University
 
Stress Management 
Will Frey, CPCC, UNC Dept. of Physicial Medicine and
   Rehabilitation, Program on Integrative Medicine
 
12:00 pm - 1:30 pm  Lunch 
   (individual disease groups, newly diagnosed and pediatric patients)
 
1:30 pm - 2:30 pm     Breakout Session #2 (choose one)
 
Health Promotion
Mary Anne Dooley, MD, MPH, UNC Thurston Arthritis Research Ctr
 
Kidneys:  Patrick H. Nachman, MD, UNC Kidney Center
 
PAIRS Study (Partners Adjusting to Illness Relationship
   Support)
Bob DeVellis, PhD, UNC Thurston Arthritis Research Center
 
Peripheral Neuropathy:  Nizar Chahin, MD, UNC Dept. of
   Neurology
 
1:30 pm - 2:45 pm   SPECIAL SESSION: Vasculitis 101-Part #1
   (for the self-identified newly diagnosed patient)
 
Ear/Nose/Throat:  Brent Senior, MD, UNC Dept. of Otolaryngology
 
Kidney:  Julieanne McGregor, MD, UNC Kidney Center
 
Lungs:  David C. Henke, MD, UNC Division of Pulmonary & Critical
   Care Medicine
 
Rheumatology:  Nancy Allen, MD, MPH, Division of Rheumatology
   & Immunology, Duke University
 
3:00 pm - 4:00 pm  Vasculitis 101-Part #2
Health Promotion:  Mary Anne Dooley, MD, MPH,  UNC 
   Rheumatology & Immunology
 
3:00 pm - 4:00 pm  Breakout Session #3 (choose one)
 
Family/Friends/Caregivers:  Bob Dill and Susan Simon, MSN, RN,
   CS
 
Fatigue:  Connie Gilet, MSN, ANP, UNC Kidney Center
 
Lungs:  David C. Henke, MD, UNC Division of Pulmonary and
   Critical Care Medicine
 
Medications Review:  Melanie Joy, PharmD, PhD,
   Pharmacotherapy and Experimental Therapeutics, UNC Kidney Ctr.
   
Reproductive Issues for Male and Female Patients
Megan Clowse, MD, Division of Rheumatology and Immunology,
   Duke University
 
4:10 pm - 4:35 pm General Session #2:  Vasculitis Foundation
   Update
 
4:35 pm - 4:50 pm  What We Learned Today!
Ronald J. Falk, UNC Kidney Center
 
5:00 pm - 6:00 pm  Tea Service and Reception
 
 
The Vasculitis Foundation has reserved a block of rooms at the
1301 N. Fordham Blvd.,Chapel Hill, NC 27514
888.452.5765 or 919.929.2171
Please note, most of the hotels in the Chapel Hill area will be booked the weekend of May 13-15 because it is graduation for several of the local universities. Additional hotel information may be found on hotel.com or hotwire.com
 

Knowledge. Community. Power. The 2012 Vasculitis Symposium - Chicago

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04/21/2012 - 00:30
US/Central

What's Happening: 

Knowledge. Community. Power. The 2012 Vasculitis Symposium - Chicago

Location

1725 West Harrison Street, Suite 500 Rush University: Searle Conference Center Professional Building
Chicago, IL, 60612-3864
United States
41° 52' 24.6828" N, 87° 40' 12.144" W
Materials: 
 
Schedule
 
7:30 a.m. - 8:30 a.m.        
Continental Breakfast
 
8:30 a.m. - 10:00 a.m.      
What is the "state of the art" for treatment of vasculitis?
What does the future hold that is even better?
 
10:00 a.m. - 10:30 a.m.    
Morning Break
 
10:30 a.m. - 12:00          
Break Out Session #1 (choose one)          
 
Choice 1A:  The Newly Diagnosed Patient
Join other newly diagnosed patients and vasculitis experts for an overview of vasculitis in general. Understanding treatments, tests and procedures, medications and side effects.
 
The following sessions will focus on the appropriate treatment and management of the individual vasculitic diseases.

Choice 1B:  Small Vessel Vasculitis: (Churg Strauss syndrome, Wegener's (GPA), Microscopic polyangiitis)
 
Choice 1C:  Behcet's, Polyarteritis nodosa, Cyroglobulinemia, hepatitis-associated vasculitis       

Choice 1D:  Large Vessel Vasculitis:  (Giant cell arteritis, Polymyalgia rheumatica, Takayasu's arteritis)  
 
12:00 - 12:45 p.m.            
Lunch                       
 
12:45 p.m. - 1:45 p.m.      
Remission and Beyond
What is remission? How is it defined in different forms of vasculitis? How long does one treat after remission? Is the choice of maintenance drugs and duration disease-dependent?
 
2:00 p.m. - 3:00 p.m.      
Break out Session #2 (choose one)                                      
 
Choice 2A:  Vasculitis Fall-Out
Fatigue, prednisone risk, osteoporosis, diabetes mellitus,                       cardiovascular concerns, peripheral neuropathy, deformity, loss of kidney function, permanent damage from disease and drugs. How does one deal with these complications?
 
Choice 2B:  Pediatrics
Join parents and young patients as our pediatric vasculitis experts
discuss the management and most current treatment options for younger patients. Attendees will be able to ask questions, meet other parents/patients, share experiences, concerns, and what works for them.

Choice 2C:  Fertility and Family Matters
 
3:15 p.m. - 4:00 p.m.        
Mind-Body Connection

4:00 p.m. - 4:30 p.m.        
Helping Extraordinary People Live Extraordinary Lives

Pre-registration is required. Deadline: Saturday, April 14, 2012.
Early Bird Registration:  $45 on or before March 15, 2012.
Registration: $55 after March 15, 2012.
 
The registration fee includes continental breakfast, lunch and morning/afternoon breaks. 
 
Click here to register online.  
or
Call the VF office to register: (816) 436-8211 or (800) 277-9474.
 
Symposium Scholarships: A generous donor has provided a limited # of scholarships for patients unable to afford the registration fee. Please contact Joyce Kullman at the VF office to learn more.
 
Click here to view a map of the Rush University Medical Center.
 
Parking at the Searle Conference Center costs approximately $13/day.
 
Click here for hotels near Rush University Medical Center or click here for Hotels.com for a greater selection. 
 
The Vasculitis Foundation acknowledges a generous educational grant from Genentech in support of the symposium.

2012 Awareness Outreach - Pianist Andrea Pittini donates earnings for research!

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Andrea Pittini, an Italian pianist, composer and music producer, has dedicated his song, "Life" to help and support Vasculitis Awareness Campaign. The song can be downloaded at  GreatPlay Music Productions, iTunes® and other selected stores. Mr. Pittini will donate 100% of revenues to the Vasculitis Foundation to support research on vasculitis. 


 

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