The National Center for Research Resources and the Office of Rare Diseases Research at the National Institutes of Health present:

Advancing Rare Diseases Research through Networks and Collaboration

July 16, 2009

7:30 a.m. – 4:30 p.m.

Main Auditorium, Natcher Conference Center, Building 45, NIH campus, Bethesda, MD

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This conference will provide a forum to:

·        Discuss lessons learned from the Rare Diseases Clinical Research Network

·        Highlight successful collaborations to improve rare diseases research

·        Highlight the involvement and essential role of patient advocacy groups to facilitate research and accrual of patients

·        Discuss the role of best practices across research consortia and research networks for translation of basic discoveries into clinical practice in rare diseases.

This event is free and open to the public. Early registration is strongly encouraged due to space limitations. If you have logistical questions, are unable to access the links on this page or if you require assistance registering, contact Kimberly Potter at 301-519-5344 or kimberly.c.potter@lmco.com. For content related questions, send an email to ordr@od.nih.gov.