The group of 14 cyclists will begin the 325-mile ride on Wednesday, June 24 at Point State Park in downtown Pittsburgh and follow the Great Allegheny Passage Rail Trail and the C&O Canal Path.  

A critical key to continuing rare disease research is the National Institutes of Health (NIH) Office of Rare Diseases Research.

On Monday, June 29th, the cyclists will deliver a letter signed by hundreds of rare disease patients, caregivers and medical professionals to Congressional representatives on the U.S. Capitol steps.

The letter will stress the need for funding rare disease research.

Click here for more information on the event and to learn more about participating organizations.