Resources for a Family of Diseases
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The group of 14 cyclists will begin the 325-mile ride on Wednesday, June 24 at Point State Park in downtown Pittsburgh and follow the Great Allegheny Passage Rail Trail and the C&O Canal Path. A critical key to continuing rare disease research is the National Institutes of Health (NIH) Office of Rare Diseases Research. On Monday, June 29th, the cyclists will deliver a letter signed by hundreds of rare disease patients, caregivers and medical professionals to Congressional representatives on the U.S. Capitol steps. The letter will stress the need for funding rare disease research. Click here for more information on the event and to learn more about participating organizations. Published on Tuesday, May 12, 2009
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Most PopularFundraising EventsThe Vasculitis Foundation relies heavily on our local teams to organize and participate in chapter events, act as local area contacts, and organize events. Upcoming EventsMar 13Latest newsInternational All Star Vasculitis Symposium July 30 - August 1, 2010
This is the first time the Symposium will be held in the western USA. The biennial conference is the largest meeting of vasculitis patients, family members and medical vasculitis experts in the world. Celebrate Vasculitis Awareness Week - April 25 through May 1, 2010
Vasculitis Awareness Week is an international effort organized by the VF to advance public awareness of this rare disease as well as the progress in treatments and advances in research. By uniting, we can create an international coalition, which speaks stronger and louder than a single entity. |
About Vasculitis Foundation
The Vasculitis Foundation (VF) is the only international organization for patients with Vasculitis. Founded in 1986, VF provides patients and family members with practical information and coping strategies to live successfully with Vasculitis.
Mission: The Vasculitis Foundation supports and empowers patients through education, awareness and research. Learn more