Cedars-Sinai Medical Center in Los Angeles, CA is conducting several research studies that involve collecting data to better understand the genetics, environmental risks, and outcomes of patients with all forms of Vasculitis

Cedars-Sinai Medical Center in Los Angeles, CA is conducting several research studies that involve collecting data to better understand the genetics, environmental risks, and outcomes of patients with all forms of Vasculitis

ACR/EULAR endorsed study to develop classification and diagnostic criteria for primary systemic Vasculitis (DCVAS)

Background

The purpose of this study is to develop new methods of diagnosing and classifying vasculitis. In order to do this, we need to collect information from two groups of people: patients who have vasculitis and patients who have diseases that are similar to vasculitis. We will use this information to create guidelines that will allow us to determine 1) if a patient has vasculitis 2) what type of the vasculitis the patient has. This study is sponsored by the American College of Rheumatology (ACR) and European League against Rheumatism (EULAR).

About this Study

A total of about 3,600 subjects with Churg-Strauss syndrome (CSS), giant cell arteritis (GCA), microscopic polyangiitis (MPA), polyarteritis nodosa (PAN), Takayasu’s arteritis (TAK), granulomatosis with polyangiitis (GPA). Controls with diseases that mimic vasculitis or secondary vasculitis will also be enrolled. We hope to enroll about 80 patients at our site. To participate patients must be diagnosed within two years of enrollment and be at least 18 years of age.

For this visit, you will be asked to:

  • Discuss your medical history and disease
  • Provide medical records or consent to a medical record release
  • Researchers may contact participants by phone for a 6 month follow up

Please visit Cedars-Sinai for more information.

Vasculitis Foundation

The Vasculitis Foundation is the international organization for patients with vasculitis, their families, friends and the health care professionals who care for them.