Wegener’s Granulomatosis: Survey of 701 Patients in North America. Changes in Outcome in the 1990s

Wegener's Granulomatosis: Survey of 701 Patients in North America. Changes in Outcome in the 1990s

January 2002

NABIH I. ABDOU, GLENN J. KULLMAN, GARY S. HOFFMAN,GORDON C. SHARP, ULRICH SPECKS,THOMAS MCDONALD, JAMES GARRITY, JAMES A.GOEKEN, and NANCY B. ALLEN

ABSTRACT.  Objective. To study the medical and socioeconomic impact of Wegener’s granulomatosis (WG) in a large cohort (n=701) of patients who are members of the international WG Support Group (WGSG).

Methods. Forty questions designed and validated by one of the authors and reviewed by the medical consultants of the WGSG International were mailed to 1690 patients with WG who are members of the WGSG; 701(41%) patients returned the questions. Diagnosis of WG was self-reported  for purpose of this questionnaire.

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