You Are the Reason This Community Exists
May is Vasculitis Awareness Month — a time to raise awareness, share stories, and ensure no one faces vasculitis alone.
This year, we celebrate the Vasculitis Foundation’s 40th anniversary — four decades of progress, connection, and lives transformed.
What began as a small group has grown into a global community helping patients find answers, access expert care, and feel supported every step of the way.
This year’s Community Heroes represent the power of that mission — patients, care partners, researchers, and advocates who are changing lives every day.
Your support helps power what comes next.
Jessica Bloom, MD, MSCS
Pediatric Rheumatologist, Co-Founder of the Pediatric Vasculitis Research Registry within the Vasculitis Patient-Powered Research Network (pedsVPPRN)
Jessica Bloom, MD
Dr. Jessica Bloom is advancing care and research for children and teenagers with vasculitis, improving outcomes for patients and families. As lead investigator of the first pediatric registry within the VPPRN, she is helping shape a stronger future for the next generation.
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Dana DeMoulin
Vasculitis Foundation Support Group Facilitator
Dana DeMoulin
Dana DeMoulin leads the Vasculitis Foundation’s support community, creating safe spaces where patients and care partners feel understood and supported. Through more than 240 annual support groups, she helps people navigate diagnosis and find connection, strength, and hope.
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Jennifer Gordon, PhD
Researcher, VPPRN Co-Investigator, Diagnosed with Eosinophilic Granulomatosis with Polyangiitis (EGPA)
Jennifer Gordon, PhD
Dr. Jennifer Gordon is a leader in vasculitis research and a co-investigator of the VPPRN, helping ensure patient voices guide discovery. As both a researcher and a patient living with EGPA, she advances awareness, advocacy, and connection across the global community.
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Megan Madison
Dedicated Advocate, Diagnosed with Granulomatosis with Polyangiitis (GPA)
Megan Madison
Megan Madison has turned her journey with vasculitis into advocacy, raising awareness and supporting others facing diagnosis and treatment. Through fundraising and storytelling, she helps others feel less alone while building connection and strength within her local community.
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Don Nagle
Former VF Board Member, Parent of a Vasculitis Patient
Don Nagle
Don Nagle’s commitment to the Vasculitis Foundation and the VPPRN has helped advance patient-driven research and expand a global registry of more than 5,000 participants. His leadership and generosity have strengthened the Foundation’s long-term stability and future impact.
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Take Action. Make a Difference.
Educate. Empower. Inspire.
Thank You to Our 2026 Vasculitis Awareness Month Sponsor
Our Community is Spreading Awareness.
Show us how YOU are spreading awareness.
Post on Facebook or Instagram and tag @VasculitisFoundation with the hashtag #VAM2026
