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Free and open to the public. Supported by the NIH.
8:30 am - 5:00 pm
Clinical Center's Masur Auditorium (Building 10)
Bethesda, MD
On February 29, 2012, the National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration and recognition of the various rare diseases research activities supported by the NIH Office of Rare Diseases Research, the NIH Clinical Center, other NIH Institutes and Centers, the Food & Drug Administration’s Office of Orphan Product Development (OOPD), the National Organization for Rare Disorders (NORD), and the Genetic Alliance. Rare Disease Day at NIH (RDD@NIH) will be held in the Clinical Center’s Masur Auditorium (Building 10) from 8:30 am to 5:00 pm. Attendance is free and open to the public. Read More.
In honor of Rare Disease Day 2012, the Food and Drug Administration (FDA) is planning to host a special day-long event on March 1, 2012, for rare disease patient advocates. The purpose will be to enhance awareness of FDA’s roles and responsibilities in the development of products (drugs, biologics, and devices) for the diagnosis, prevention, and/or treatment of rare diseases and conditions. This event will take place at FDA’s White Oaks facility in Silver Spring, MD. The program will be interactive. There will be opportunities for questions and discussion, in addition to presentations by key FDA officials. For those unable to attend the in-person meeting, there will be a simultaneous webcast. Learn more.
