Upcoming Events

Cleveland-Akron Chapter Meeting

02/08/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Lynn Corwin

Phone:  216-570-1076

annabelle3@hotmail.com

7 pm

Northfield Center Town Hall

9546 Brandywine Road

Northfield Center, OH  44067

Guest Speaker:  Joyce Kullman, Executive Director of the Vasculitis Foundation

RSVP to Lynn Corwin.  Please feel free to bring your friends and family.  There is, of course, no cost and I provide the water.

Central Florida Chapter Meeting

02/18/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Evelyn Silva

Phone:  407-327-4837

blondie417us@yahoo.com

12:30 pm - 2:30 pm

Seminole County Library (Jean Rhein Central Branch)

215 N. Oxford Road

Casselberry, FL

Meeting Room on the main floor.

Feel free to bring in drinks or food to share.

AARDA Free Conference - Miami, Florida

02/18/2012 - 00:00
Etc/GMT
What's Happening: 

AARDA is having a FREE conference open to autoimmune patients, their families and the general public. 

"What Every American Needs to Know About Autoimmune Disease"

10:00 am - 2:30 pm

Miami Children's Museum

980 MacArthur Causeway

Miami, FL  33132

Please see the attached flyer for more information on the conference and registration.

Tampa, FL Chapter Meeting

02/25/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Norma Zayas-Lopez

Phone:  813-626-9408

2 pm

Mission Marantha

6802 Palm River Road

Tampa, FL  33619

East Central MN Chapter Meeting

02/25/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Kami Schmidt

Phone:  320-629-7704

ecmnvasculitis@yahoo.com

2 pm

Pine City Public Library

300 5th St. SE

Pine City, MN  55063

Rare Disease Day

02/28/2012 - 00:00
Etc/GMT

NORD Hill Day

02/28/2012 - 00:00
Etc/GMT
What's Happening: 

Join NORD as we bring Rare Disease Day to Congress. Help us share share key rare disease advocacy messages with your representatives. If you are interested in more information about this event, as it becomes available, please sign up here.

Rare Diseases Day at NIH

02/29/2012 - 00:00
Etc/GMT
What's Happening: 

Free and open to the public.  Supported by the NIH.

8:30 am - 5:00 pm

Clinical Center's Masur Auditorium (Building 10)

Bethesda, MD

On February 29, 2012, the National Institutes of Health (NIH) will celebrate the fifth annual Rare Disease Day with a day-long celebration and recognition of the various rare diseases research activities supported by the NIH Office of Rare Diseases Research, the NIH Clinical Center, other NIH Institutes and Centers, the Food & Drug Administration’s Office of Orphan Product Development (OOPD), the National Organization for Rare Disorders (NORD), and the Genetic Alliance. Rare Disease Day at NIH (RDD@NIH) will be held in the Clinical Center’s Masur Auditorium (Building 10) from 8:30 am to 5:00 pm. Attendance is free and open to the public. Read More.

FDA Rare Disease Patient Advocacy Day

03/01/2012 - 00:00
Etc/GMT
What's Happening: 

FDA's White Oaks Facility

White Oak Campus

10903 New Hampshire Ave.

Silver Spring, MD  20993

In honor of Rare Disease Day 2012, the Food and Drug Administration (FDA) is planning to host a special day-long event on March 1, 2012, for rare disease patient advocates.  The purpose will be to enhance awareness of FDA’s roles and responsibilities in the development of products (drugs, biologics, and devices) for the diagnosis, prevention, and/or treatment of rare diseases and conditions.  This event will take place at FDA’s White Oaks facility in Silver Spring, MD. The program will be interactive.  There will be opportunities for questions and discussion, in addition to presentations by key FDA officials.  For those unable to attend the in-person meeting, there will be a simultaneous webcast.  Learn more.

Crop 4 A Cure Fundraiser

03/03/2012 - 00:00
Etc/GMT
What's Happening: 

Contact:  Ginny Smith

vsmith53@comcast.net

Quincy Mall

3347 Broadway

Quincy, IL  62301

More information TBA.