Educational Articles

pagetop_articles

 

 

 

 

 

Qualifying for Social Security Disability Benefits with Vasculitis

By Deanna Power Director of Outreach, Disability Benefits Help Email:  [email protected] Vasculitis comes in a variety of forms and severities.  While some people with the disorder experience mild, manageable symptoms, more »

Pregnancy Possible for Women with Vasculitis

As treatments for vasculitis have improved, more and more younger patients are healthy enough to have children. There is little guidance to either the doctor or the Mom-to-be on what more »

Trying to Understand Giant Cell Arteritis Relapse

  Giant cell arteritis (GCA) is a chronic condition with frequent relapses. A better understanding of why relapses occur might help identify patients who would benefit from longer treatment duration. more »

Biomarkers Not Helpful in EGPA Treatment Decisions

Eosinophilic granulomatosis with polyangiitis (EGPA) is a disease that can be hard to manage. Certain blood tests (also known as biomarkers) have been used to follow disease activity and predict more »

EGPA Management and Treatment Recommendations Issued

  Eosinophilic granulomatosis with polyangiitis (EGPA), also known as Churg-Strauss Syndrome, is a rare form of vasculitis affecting small-to-medium sized blood vessels. Although the number high-quality clinical trials have been more »

Illness Perception Impacts on Vasculitis Symptoms, Especially Fatigue

How a person perceives their illness can be an important part of staying with treatment and continuing recovery of function over time. In addition, a person’s outlook on their disease more »

VF’s Monday Question: We ask. You answer. We all Learn.

Using social media to connect, share, and support patients living with vasculitis and their families. The Vasculitis Foundation strives to connect our community to share knowledge, experiences and to offer encouragement more »

Planning Ahead for Emergency Visits

I work as an RN in an emergency department in downtown Cleveland and I see people on a daily basis who through no fault of their own, end up in one more »

Going Beyond the Physical: The Mental and Emotional Toll of Rheumatic Diseases

Rheumatic diseases can be physically devastating. They often cause pain and disability – leading those who suffer from rheumatic diseases to make drastic lifestyle changes. A once spotless house is more »

Successfully Manage your Vasculitis

  Receiving a diagnosis of vasculitis can be overwhelming. The Vasculitis Foundation encourages patients, their family members and caregivers to learn as much as possible about vasculitis so they can effectively manage more »

Reservoirs of Staph can Lurk Deep within the Nose

Scientists at the Stanford University School of Medicine have revealed that formerly overlooked sites deep inside the nose may be reservoirs for Staphylococcus aureus, a major bacterial cause of disease. The results more »

Natural Treatments for HSP

Henoch Schonlein Purpura, otherwise known as HSP, is a type of vasculitis that occurs largely in the pediatric population. In fact, HSP is the most common type of childhood vasculitis, and more »

Using Complementary Health Practices (Time to Talk Tips)

When patients tell their providers about their use of complementary health practices, they can better stay in control and more effectively manage their health. When providers ask their patients, they can ensure more »

Hospital Stays and ER Visits

Talking with a doctor during a hospital stay or in the emergency room (ER) can be stressful. Hospital Schedules Most hospitals have a daily schedule. This means that things like more »

Caregiver stress: Tips for taking care of yourself

Caring for a loved one strains even the most resilient people. If you’re a caregiver, take steps to preserve your own health and well-being. With an aging population and changes more »

Abatacept and Non-severe relapsing GPA

An open-label trial of abatacept (CTLA4-IG) in non-severe relapsing granulomatosis with polyangiitis (Wegener’s)  Authors:  Langford CA, Monach PA, Specks U, Seo P, Cuthbertson D, McAlear CA, Ytterberg SR, Hoffman GS, more »

Rheum to Heal – A New Initiative from The Hospital for Special Surgery

Rheum to Heal is the first ever narrative medicine journal in rheumatology. This is a place for patients, family members, physicians and all those whose lives are influenced by and those more »

Beyond the Negative

Dissertation investigates depression, anxiety and life satisfaction in vasculitis patients. A York St. John University student’s dissertation investigates the role of metacognitions in adapting to living with vasculitis. Helen Mayor, more »

The Social Cost of Vasculitis

Over the past 10 years I have watched my mother struggle with an autoimmune disease. She has gone from a vibrant, energetic woman who rearranged the living room furniture every more »

Lessons Learned

If you’re a fan of Westerns, you may recall the movie Open Range starring Robert Duvall and Kevin Costner. In one of my favorite scenes, their crusty cowpoke characters peer more »

The Real Promise of Mobile Health Apps

Mobile devices have the potential to become powerful medical tools As a volunteer in a trial of mobile health technology, I can attest that it’s incredibly cool to pick up more »

Before Leaving the Hospital, Consult Your Checklist

When checking into a hospital, patients naturally worry whether their visit will go well. But leaving the hospital safely can sometimes present an even trickier challenge. Patients are going home more »

NIH-supported scientists find genes influence susceptibility to problems from vitamin D deficiency

An international team of researchers has found that the vitamin D receptor gene (VDR), which senses and communicates the presence of vitamin D to the body, influences the chance that more »

Do you always follow your physician’s advice?

Over the years, the American Autoimmune Related Diseases Association (AARDA) learned in conversations with our members and others that they might or might not follow their doctor’s recommendations for treatments more »

Eating to Beat Inflammation

Last Saturday, I spoke at a conference at Emory for the Vasculitis Foundation on anti-inflammatory foods. Like me, you may be asking, “What is vasculitis?” Vasculitis is a group of more »

Vasculitis Related Genes Cause Inflammation of Blood Vessels

Medical scientists at Trinity College in Dublin, in a pan-European collaborative study, have discovered genes that contribute to the condition vasculitis, causing the inflammation of blood vessels. The findings have more »

Lancet Article Investigates Primary CNS Vasculitis

An article in the Lancet (2012, 380: 767–77) provides an overview on the current state of diagnosis and treatment of primary CNS vasculitis. It was written by Carlo Salvarani, Department more »

PEXIVAS Study Update

March 2013:  This clinical trial is enrolling patients. PEXIVAS: An International Randomized Controlled Clinical Trial Assessing Plasma Exchange and Steroid Dosing in the Treatment of Severe Anti-Neutrophil Cytoplasm Antibody (ANCA) more »

Treat-to-target in vasculitis: is this a sensible approach?

January 2013:  An article in Clinical and Experimental Rheumatology (2012,30,4,Suppl.73, Pg. 0149-0153) provides an overview of the pathophysiological drivers that may lead to the identification of specific targets that can more »

Disease and the Public Eye

June 2013:  I’m in line at the supermarket holding three items close to my chest. But I might as well be juggling my Kleenex box, toothpaste tube and an orange. more »

The Chronically Collegiate: Making College Accessible to Chronically Ill Students

January 2013 By Nikki Crouse Managing chronic illness for anyone can be a struggle. As a college student, there are a few more challenges associated with chronic illness; the biggest more »

Shaking Out Clues to Autoimmune Disease

Researchers gained new insight into how an immune cell involved in several autoimmune disorders is regulated. Among their findings was a potential link with salt consumption. Autoimmune diseases arise when the immune more »

Cogan’s Syndrome

March 2013 Cogan’s syndrome (CS) is the combination of hearing loss, vertigo, and inflammation in the eyes of uncertain cause, which can be associated with a large-, more often than more »

Update: The new, 2012 Revised International Chapel Hill Consensus Conference Nomenclature of Vasculitides

January 2013 By Eric L. Matteson, MD, MPH, Mayo Clinic The new nomenclature for the various forms of systemic vasculitis has just been released. This system of naming vasculitis is more »

Five Tools to Cope with Invisible Illness

January 2013 By Lisa Copen “You look so good! You can’t be as bad as you say. You look perfectly healthy.” “You think you have fatigue? Try working full time more »

Farewell to House

January 2012 Raising awareness of vasculitis takes many forms and for the past eight years, the VF has had assistance from House, M.D., an American television medical drama that debuted on the Fox network on more »

Nutrition and Vasculitis

January 2013 By Aimee Shea, MPH, RD, CSO, LDN, Outpatient Oncology Dietitian, NC Cancer Hospital  Most people diagnosed with vasculitis will likely agree – nutrition is complicated.  Both the symptoms more »

Types of Blood Tests

January 2012 Some of the most common blood tests are: A complete blood count (CBC) Blood chemistry tests Blood enzyme tests Blood tests to assess heart disease risk Blood clotting more »

Ocular Side Effects of Various Medications (Drops, Pills and Injectables)

January 2012 By James A. Garrity MD Whitney and Betty MacMillan Professor of Ophthalmology Mayo Clinic, Rochester, MN One of the functions of the Vasculitis Foundation has been to provide more »

Your Health Depends on Good Communication

December 2011 Asking questions and providing information to your doctor and other care providers can improve your care. Talking with your doctor builds trust and leads to better results, quality, more »

Placebo Improves Asthma Symptoms, But Not Lung Function

July 2011 By Allison Bierly, Ph.D. Placebo treatment may make asthma patients feel better but not actually lessen disease, according to a new study. The finding helps clarify the benefits more »

Deep Vein Thrombosis

July 2011 Deep vein thrombosis (DVT) can be a killer. Here’s how to understand and prevent DVT—at any age. What Is Deep Vein Thrombosis? Deep vein thrombosis (DVT) is a more »

Helping WG and MPA Patients Avoid Cardiac Events

May 2011 A new diagnostic model will help physicians identify those at risk for cardiovascular events among patients newly diagnosed with Wegener’s granulomatosis (WG) and microscopic polyangiitis (MPA). This is more »

Vasculitis and Oral Health

May 2011 By John Mills, BDS, DGDP UK, Chairman, Vasculitis UK Vasculitis can affect all parts of the body and the mouth is no exception. Large, persistent and excruciatingly painful more »

Supporting International Research for Rare Diseases

April 2011 Two recent workshops sponsored by the European Commission, Health Directorate, DG Research and Innovation, and the US National Institutes of Health Office of Rare Diseases Research (ORDR), focused more »

New Horizons Discovered for GCA Treatment

January 2011 By Cornelia Weyand, MD, PhD New research from Stanford University has identified three molecules that play a role in the abnormal immune responses of GCA. The discovery may more »

The Best Kept Secret in Health Care

November 2010 “Collecting your family health history is, indeed, the best kept secret in health care,” according to Dr. Charis Eng, a cancer geneticist at the Cleveland Clinic’s Genomic Medicine more »

SED Rate

November 2010 By Mayo Clinic staff Definition Sed rate, or erythrocyte sedimentation rate (ESR), is a blood test that can reveal inflammatory activity in your body. A sed rate test more »

Vasculitis: Possible Mechanisms and Role of Autoimmunity

August 2010 By Nabih I. Abdou, MD, PhD Clinical Professor of Medicine Vasculitis Foundation Medical Consultant Presented at the All Star Vasculitis Symposium Long Beach,California Why do we need to more »

What is Peripheral Neuropathy?

July 2010 Peripheral neuropathy describes damage to the peripheral nervous system, which transmits information from the brain and spinal cord to every other part of the body. More than 100 more »

Exercise Takes the Edge off Chronic Pain

May 2010 When you’re in pain, exercise is probably the last thing on your mind. But it may be more important than you think. Regular exercise is a versatile weapon more »

Food for Thought: Let’s Defend Against Disease

March 2010 Inflammation, once simply considered the body’s healing response, is now the subject of close study as a key component of many diseases such as arthritis.  Inflammatory response is more »

What Role for Acupuncture in Chronic Disease?

February 2010 Scientists aren’t ready to claim that acupuncture works for any specific disease -yet.  But studies supported by the NIH National Center for Complementary and Alternative Medicine (NCCAM) have more »

Protecting Yourself From Shingles

January 2010 “I wouldn’t wish shingles on my worst enemy!” That’s frequently the reaction of those who experience the pain of this common virus. Here’s what you need to know more »

Optimism and Health

July 2009 Shift from the dark side Did you know that your outlook on life can impact your health and quality of life?  There’s and ever-expanding body of research examining more »

Wegener’s Granulomatosis: Survey of 701 Patients in North America. Changes in Outcome in the 1990s

January 2002 NABIH I. ABDOU, GLENN J. KULLMAN, GARY S. HOFFMAN,GORDON C. SHARP, ULRICH SPECKS,THOMAS MCDONALD, JAMES GARRITY, JAMES A.GOEKEN, and NANCY B. ALLEN ABSTRACT.  Objective. To study the medical more »