Churg Strauss Patient Resources
The CSSA is a non profit organization dedicated to supporting and educating patients and their families who are afflicted with Churg Strauss Syndrome.
The Churg-Strauss Syndrome International Support Group mailing list aims to provide a means for patients, carers and all concerned with the disorder to share their knowledge and experience. Many of the list subscribers are patients who are only too happy to support the newly diagnosed.
Ken Abbott's blog about his experience with CSS written in the hope that it will be helpful to others going through the same thing.
Kate Tierney shares her experiences living with CSS.
Patient: The True Story of a Rare Illness. A book about CSS written by Ben Watt. Highly recommended.
Most of the Vasculitis Foundation's support groups are open to patients with any type of vasculitis.. The groups meet several times a year to discuss medical updates, ongoing research studies and to offer comfort and support to each other. Much can be learned at a meeting, whether it is a discussion among patients or features a medical professional or other expert. Churg Strauss Syndrome patients are encouraged to contact VF chapter leaders in their area for further information.