Blog

Lynn’s Story

My Churg Strauss (EGPA) Life I never feel why me? I feel why not me? CSS (Churg Strauss Syndrome/Vasculitis), now known as EGPA – Eosinophilic granulomatosis with polyangiitis – is more »


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Carrie’s Story

Carrie Gallagher is a wellness professional. So after being diagnosed with granulomatosis polyangiitis (Wegener’s) in 2012, she did the only thing she knew to do: Make lifestyle changes to help more »


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AAV Patients and Volunteers Needed for a Clinical Trial in Vasculitis

Patients with anti-neutrophil cytoplasm antibody (ANCA)-associated Vasculitis (AAV) are at risk of disease relapse and so are often kept on long-term medication that suppresses their immune system. These medications may more »


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2014 Vasculitis Foundation Fellowship Recipient

The Vasculitis Foundation is pleased to announce the selection of Dr. Rennie Rhee, University of Pennsylvania, as the 2014 Vasculitis Foundation Fellowship Recipient. The Vasculitis Fellowship Program is made possible more »


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Rally Events Are Being Held Around the United States. Find One Near You!

The Rally in the Alley events are volunteer-led bowling events held around the country at a community bowling alley. The goal of the events are to raise Friends and Funds more »


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VF Receives PCORI Grant to Establish Vasculitis Patient Powered Research Network

The Vasculitis Foundation is pleased to announce that a team with representatives from the VF has been awarded a grant to establish the Vasculitis Patient Powered Research Network (V-PPRN).  The more »


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Hope Gives Us Power to Choose our Outcome

If there was ever a time to practice what I preach, these past six months have become that time.  I am a psychologist who for the past 20 years has more »


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Vasculitis Foundation Saddened by Death of Harold Ramis

The Vasculitis Foundation is deeply saddened about the death of Harold Ramis, actor, writer, director and one of Hollywood’s most famous comedy filmmakers, due to complications from autoimmune inflammatory vasculitis, more »


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VCRC Trial Enrolling Patients Now! The Assessment of Prednisone in Remission (TAPIR) Trial

This is a trial for patients with granulomatosis with polyangiitis (Wegener’s). You are invited to participate in a clinical trial being conducted by the Vasculitis Clinical Research Consortium (VCRC) under more »


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