Blog
The Right Doctor Changes Everything
- Story
- Cryoglobulinemic Vasculitis
Blog For five years, doctors told Stephanie there was nothing wrong with her. Her bloodwork was inconclusive. In her hospital records, doctors dismissed her as “psychosomatic.” But her pain and fatigue kept getting worse. At one point, she was bed-bound for seven months until one doctor, assuming her symptoms were auto-immune related, finally started her […]
Poems from Our Community
- General Vasculitis
Blog “My feeling is that poetry is also a healing process, and when a person tries to write poetry with depth or beauty, they will find themselves guided along paths which will heal them, and this is more important, actually, than any of the poetry they write.” -Robert Bly Recently, twenty-five of our community members […]
“Will I Ever Feel Normal Again?” How Jenna Lea Faced High School and Vasculitis
- Microscopic Polyangiitis, Pediatric Vasculitis
Blog “It’s not often in life, especially so early in your life, that you have odd experiences,” Jenna Lea, a rising senior at North Carolina State University, said. “I would call this”–getting diagnosed and living with vasculitis–“an odd experience.” Now, she wants to make the most of it, for herself and the vasculitis community. “I […]
Championing Vasculitis Victories: Art Diaz’s Choice to Advocate
- Story
- Granulomatosis with Polyangiitis
Blog Art Diaz was living a full life in Southern California and rarely got sick. He was fit; a runner. Every few years, he’d force himself to see his primary care doctor, but the doctor would give him a clean bill of health and he’d go on his way for another few years. Art thought […]
VPPRN 6-Month Check-in Forms – Community Dashboard
- News, Symptoms
- General Vasculitis
Blog 6-Month Check-In FormsVPPRN Community Dashboard | January 2023Take a look below at what we learned from the VPPRN community about FATIGUE, PAIN, FLARES and SYMPTOMS OF VASCULITIS at the January 2023 check-in.What did we learn about FATIGUE and VASCULITIS?We learned that most patients (over 88%) experience some fatigue related to their vasculitis. Fatigue is not uncommon […]
VF Announces 2023 V-RED Winners
- V-RED
- General Vasculitis
Blog It’s been a year of surprises for our Vasculitis Recognizing Excellence in Diagnosis (V-RED) award program. We have two winners who tied for first place, two winners who received honorable mentions, and this is the first year we’ve had a winner from Germany and Saskatoon, Canada. This is the 10th year that the VF […]
