Archive for March 26, 2017

Wisdom of a Ferocious Patient Advocate

Celeste Lee, cherished wife, sister, daughter, mother, faithful friend, and passionate patient advocate, died at age 51 from the autoimmune disease vasculitis, surrounded by family and friends, both near and more »


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Brandon Hudgins Receives 2017 Rare Impact Award

The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 2017 Rare Impact Awards on May 18 in Washington, D.C. more »


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VF Board President Talks About Personal Impact of Vasculitis on Rare Disease Day 2017

VF Board President, Karen Hirsch, appeared on Good Morning Washington, WJLA in Washington D.C. to discuss the importance of raising awareness about all rare diseases on Rare Disease Day 2017.   more »


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