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My name is Jane Dion and I was diagnosed with Churg Strauss Syndrome six years ago. My husband John and I attended the last two Vasculitis Foundation Symposiums and are greatly looking forward to the 2008 Symposium. It's exciting to hear some of the world's foremost vasculitis specialists speak about topics of interest to us all, to hear about the latest research and to have a opportunity to meet these wonderful doctors and ask questions during panel discussions. Just as importantly, it is wonderful meeting others with this rare disease as there is an instant rapport and and sense of community that happens almost spontaneously. Every type of vasculitis is rare, and this symposium offers two very unique opportunities: to meet and interact with patients who have an innate understanding of what is it to have one of these diseases, and to learn from some of the world's foremost vasculitis medical professionals. Published on Tuesday, April 1, 2008
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Most PopularFundraising EventsThe Vasculitis Foundation relies heavily on our local teams to organize and participate in chapter events, act as local area contacts, and organize events. Upcoming EventsJan 10Jan 10Latest newsKawasaki Disease UpdateKawasaki Disease is a rare vasculitis, which strikes children. In the U.S. over 4,200 children are diagnosed with it each year. 80% of patients are under the age of five. Patients usually begin with a fever that lasts at least five days, despite fever medications. Celebrate Vasculitis Awareness Week May 3-9, 2009Click here to learn more about Vasculitis Awareness Week 2009! |
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